what is wrong with me

Posted , 7 users are following.

Hi all

Im 30 female

For over a year these r some symptoms iv been having i thought it could be fibromalgia but now iv came across ms really confused and sick...

Pain all over my body:

Arms wrists fingers legs knees ankles toes feet

Back neck shoulders

Jaw pain

Migraine

Pin prick feelings over my body

Crawling sensation goin up the back of my head and on crown of my head

Pulses in calf & spasm like cramp

Buzzing noises in my ears

Really bad memory

almost like im going in slow motion sometimes.

Mouth ulcers and swollen salavary glands

I.b.S

Weird feeling of something movin in my tummy under ribs this has jus started. Im not preg lol

Thes last few weeks my legs have been in so much pain and my arms i even feel like like im gettin pin pricks in my eyes sometimes and on my cheeks

I just dont know wats goin on and iv had enough and feel like im talking to the wall when i go c my doctor.... xxxx

0 likes, 23 replies

23 Replies

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  • Posted

    Ask for a referral to neurologist. I get all those things too. Tnj which is jaw can be helped by dentist or maxofacial. Are you US or UK? My gkands under chin ate perm swollen though it's a while since I had mouth ulcers, I have IBS but also what I think is mild crohns, not that it feels mild whennit flares. I think fibro and ms are related even though I know they send you to different specialist. I'm sorry you're going through this, I woukd like to be positive for you but am having a rotten day too sad good luck
  • Posted

    Could possibly be a vitamin deficiency. Get your B12 and D tested. Risks for B12 deficiency include family history of pernicious anemia, long term use of PPIs or H2 blockers, vegan/vegetarian diet for a long time, or gastric surgery.

    Conventional doctors are using a low cutoff for B12 that is way too low. If your B12 is below 400 pg/mL (or ng/L) it should be treated especially since you are are experiencing neurological symptoms.

    Also get tested for Lyme disease if you were anywhere you may have been exposed to ticks a year ago.

  • Posted

    Im in the uk.

    Thanks alot for ur replys

    Even when i ended up in a & e the doctor told me that i should be seeing a neurolugist he even wrote to my doctor and i made an appointment with my doc and he totally just ignored what i said. He said i know what a neurologist would give you and gave me amitrptiline. Im not leavin that doctors today without answers xx

    • Posted

      Amytriptyline is something I've been on and my mum too. It's not a cure all it just helps pain killers work and is to help you sleep. You need a confirmed diagnosis. Yes don't meave without a referral, ask fir 2nd opinion if he refuses. I'm afraid you'll have to fight everybody. I hope you get a nice neurologist. I've been awake most if the night. Ms usnt a death sentence and if you have it it won't be your first enemy this government is. Good luck pop back let's us know how you get on πŸ’
    • Posted

      Thank you i will let you know how i get on today xx
    • Posted

      Thinking of you today, fingers crossed. Sorry about typos my eyes were bad in night. 🌹
  • Posted

    Hope things go for you.
    • Posted

      Thank you everyone i went to docs wrote everything down so i didnt miss anythimg bcos my mind goes blank when i get there. His reply was none of these symptoms fit into any medical condition...... he siad to me what do u think it is i said i dont know im just really sick of been in so much pain i want to see a neurolugist his reply im not sending u to a neurolugist..... so i said even the docs at the a&e said i need to see a neurolugist... e soon changed his mind when i said that. He said il send u to one but i dunno what im goin to say to them about why im sending u im like ehhh jus tell them everything iv been telling u the past year and all that i wrote down today!! He said i dont think they will find any thing! 😑😩😣and he upped my sertraline to 150mg he said he thinks its my way of dealing with things im like ehhhh how can i b in so much pain seriously its not in my head!!!! Xxx
    • Posted

      Omg sounds like the idiot I used to have, where are you? It's a blumming nightmare, the Dr's don't like diagnosing MS and he shouldn't refuse a referral hrs not God. Your symptoms are like mine. Change your Dr. My neurologist wasn't nice the first I saw him, my Dr had treat me like a hypochondriac for years, the neuro made me cry but after my tests and brain scan he was Mr nice that's how I knew before he told me. Trouble is I have a new one and my old notes have been lost :'( its a constant battle I'm sick of. Let's hope you get a good neuro. Demand an MRI scan, its your life. Sorry he was like that and we'll done you. Niw chase the aoot up if it seems to take too long. Thanks for coming back. Where do you live? X
    • Posted

      Im in the uk. U??

      Yeh he is terrible iv heard loads of stories about him i duno how he is a doctor tbh... what showed up on ur mri scans etc for u to get a diagnosis of u dont mind me asking xx

    • Posted

      Hi I meant whereabouts in UK. I had MRI and evoked potentials, I had several back MRI's first over a period of years due to lumbar discs. It was after last one I said to the orthopaedic consultant could I have MS, he said "that's why we are referring you to a physician he didn't say neuro but that's what what he meant. The neuro said " so you think you've got MS " !!! In a nasty snide way. He did some knee battering etc then sent me for evoked potentials then brain MRI I didn't take it all in but remember he said my brain was inflamed and when I got home I cried thinking I had BSE ! Daft eh. Mum showed lesions on her brain scan, so did my sister but sister not had MS diagnosis, my other sister was diagnosed Parkinson's but I think she too had MS, she died last year but she had a multitude of complications so don't let that scare you. X
    • Posted

      So what does inflamed brain mean that sounds scary...

      Im from north east πŸ˜ƒ u xx

    • Posted

      Yorkshire but my Dr and neuro are in Dorset. I could never have a conversation with him, he wasn't a nice man only the one time. My Dr wouldn't give me the drugs the neuro prescribed and he said "I wouldn't join the ms society just yet" but my friends dads a Dr and he was doing cover and he said why aren't you on these tabs because they'd hell with your current problem. I told him the other Dr said too many nasty sude effects, he rolled his eyes and prescribed them. It made me so wary I even asked the neuro next time I saw him if I had ME he said "if you had ME I'd tell you you haven't got ME, you've got MS" and he shouted it. When I had eye problems and asked if it was ms he said "U fibt know" in a gkippanr manner eventually I stopped going and now my notes are missing and my new neuro doesn't even know my tests results !!!! Sorry this sounds awful you may have a great neuro, take someone with you though. I think my brain gets inflamed a lot. I feel it sometimes, I get a headache and ms symptoms and I touch the scar I havenin my head and its hot. Aspartame sweetners inflame it toiy, I have to ready everything I eat and drink to make sure its not in. Google it, my husband noticed it first, zkyrred speech eye problem, clumsiness so he said it's when you put them white things in your coffee. canderel, so he researched it. Aspartame the sweet poison. sad try and have a giid weekend, you will be looked at by a specialist and will get sorted out. 🌸🌹🌼.

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