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I had my MRI yesterday to determine if the blood vessels are good enough so i can have a UFE done asap. I was scheduled for a laparoscopic hysterectomy to remove a huge fibroid bigger than a 6 month old babys head and my uterus is huge feels and looks like I am 10 months pregnant. It hurts when i take a deep breath because my uterus is pushed up under my rib cage. I'm in so much pain. I found out 6 days before the hysterectomy that i was too high risk for the surgery. I wanted to die. I've been looking forward to this surgery since November 30th 2018. I was making plans for new life that was going to start on 2/11/19 (hysterectomy day)
My fibroid sits on my cervix and I'm in so much pain and discomfort. My uterus feels super itchy pinchy sore burns and my pelvic area feels like its going to crumble into pieces due to all the weight and pressure of the fibroid. I need a break from this pain.
Ibuprofen or Tylenol do not work for my pain. I've tried oxycodone and it doesn't alleviate any of this pain. I tried very expensive CBD oil i got from my wonderful doctor and it takes maybe 10% of the discomfort away. I do heat and lots of rest with feet up. I've been on meds to stop my hemorrhaging since 11/30/18. I dont know how much longer of this I can take. I have and live a very poor quality of life. I dont even leave my home anymore unless I'm going to the doctors. I had a blood transfusion in October 2018 and many iron transfusions and scheduled to get another one Monday 2/18/19.
I live in Portland Oregon and am being seen @ OHSU. Any advice on what medications helped you, I would really appreciate it.
Thank you for listening to my story. I feel so alone and desperate. I just want to be healed. I'm exhausted.
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