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What! My dr is right, after all?

Posted , 11 users are following.

DebbieHurts
DebbieHurts

I got my lab tests back and still high SED rate 49, which is only 5 or 6 less than it was last time, despite a week on 24mg of pred. I felt better, but the inflammation is still there.  My doctor has been trying to find out why with lots of tests that all turn out OK.  I thought it was PMR, but now I'm not so sure.  It was PMR at the beginning 6 years ago, as the pred worked wonders on the SED rate (down to 20 SED).  Strange.

0 likes, 4 replies

4 Replies

  • EileenH
    EileenH DebbieHurts

    Posted

    Could be PMR - with something in parallel. Sed rate rises in response to a LOT of things!
  • constance.de
    constance.de DebbieHurts

    Posted

    Hi Debbie.  I too have had PMR for six years and my sed rate goes up and down like a yo-yo.  Sometimes it’s 28, sometimes 40 odd, sometimes nearer 60.  It used to worry the life out of me, but as all other blood results were reasonable I just decided to ignore it.  It even went down to 18 once! 

    There has always been something running along with my PMR.  The doctors have never found out what is - and I have been in hospital so many times that I now do my best to persuade them that I don’t need everything checked again and again.  Throughout my journey cocodamol has always helped to relieve the pain (it doesn't help PMR pain I am told)!!  During the long long years OA and

    OP have joined the game - so there’s no way of finding out where the pain still comes from.

    As I am now down to 3 mg of pred I’m doing well (famous last words)!!  Take heart,we WILL get through this.

    💐💐

     

    • Michdonn
      Michdonn constance.de

      Posted

      Yes, will Constance.de, unfortunately some people have more bumps on the journey than others. I try to stay positive and keep a smile on my face. Just movin down the road. ☺️
  • DebbieHurts
    DebbieHurts

    Posted

    Constance, your message helps me.  I think soon I am going to let it be, and not take so many tests.  When does it end?  When do you just accept you have PMR and arthritis and osteo and fibromyalgia all together.  It all reaches back, in my and my psychologist's opinion to my evil uncle using me sexually as a tiny child (up to six years old) and so wrecking my ability to ease inflammation.  But it doesn't even begin there, as something was wrong with him, too, that goes back and back.

    Today I had a busy day and I feel kind of good about it this evening!

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