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Hello, I'm new to the forum but not so new to CFS - I've had it for two and a half years now. I don't really expect people to understand it (I didn't, until I experienced it for myself), but there are some things that people say that really push my buttons! I know that they are just trying to be helpful, and I do try to take it in that spirit, but it's not always easy. I was wondering if other people feel the same, and if anyone has any other examples of 'what not to say to someone with CFS'!
From the medical profession:
Dr A: The trick is, you have to WANT to get better, then you will.
Dr B: You have to stop being so focussed on getting better. This is what God wants for you, you just need to accept that.
Dr B: You just need to accept that whatever your dreams are in life, you won't be able to achieve them. I don't understand why you're getting upset?
At the workplace:
Boss (on first being told I have CFS): Oh. I don't believe in that.
(I should stress though, she is a brilliant boss and has been very supportive! Her first response just took me by surprise - but at least it was honest!!)
"Oh, I bet if you tried X it would sort you right out"
X being (amongst a thousand and one other things) - dairy free, gluten free, paleo diet, vegetarianism, organic only, flax supplements, nutribullet smoothies, tumeric supplements, iron supplements, berrocca,..
You know, because there is a really EASY answer to this, that we're just all missing
Oh dear, I'm worried now that this post sounds too cynical and complaining!! Although I do sometimes get wound up, I'm getting much better at smiling and ignoring well meant advice. On good days, I can look back and get a laugh out of some of the daftest - so I hope one or two of the above has struck a chord with some of you and made you smile!
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