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What now?!

Posted , 8 users are following.

Gem1384
Gem1384

Hi all, I haven't posted on here in a while as I was convinced by my symptoms that there was something wrong with my pancreas. My GP was also in agreement that my symptoms sounded like it but all my tests were normal.

I saw my consultant who advised they would do more tests as long as when they came back normal I was to draw a line under it and move on.

My ultrasound was normal but showed debris in my gallbladder. Endoscopic ultrasound showed everything as normal (pancreas, bile ducts and gallbladder).

I am still waiting for my HIDA and SeChat scan which are in September.

I am lost to what is wrong with me now. Could I still have something wrong with my pancreas but it not show on scans? I thought EUS was the best diagnostic for early chronic pancreatitis.

Could it really be IBS? The pain is so disabling! Right after eating on my left side on my ribs and side and goes up into my back and shoulders.

The Amtriptiline seems to be working? Or it could be a coincidence that I started grape seed extract and turmeric at the same time.

I have been tested for IBD, celiac, gastritis. Normal endoscopy and sigmoidoscopy. Bloods are all normal. (Did have vitamin D deficiency and calcium deficiency).

I bloat after eating, I have lost weight and struggled to put it back on which I have slowly managed to do. My stools are loose, diarrohea, yellow, orange and light brown in colour. I suffer with bone aches and pains, intigestion, acid reflux, heart palpitations, fast heart rate, sore throat, mouth ulcers and throat ulcers, any food with any fat in it causes me huge problems. I have undigested food in my stool.

Any help with any of this would be great!

Thanks in advance!

0 likes, 27 replies

27 Replies

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  • christine58244
    christine58244 Gem1384

    Posted

    I had a spell of diarhoeea for 3 months and was told it was IBS  I have started drinking green tea and I just read that lemon juice is also good so I will be giving that a try I am waiting for a colonscopy but after reading the horror stories on here not sure if I can go through with it.  I am treading carefully on what I eat now bread is definitley out so not eating gluten.
    • Gem1384
      Gem1384 christine58244

      Posted

      Hi Christine. I didn't find my sigmoidoscopy too bad. It did hurt (no sedation) but I'm stuck together a bit coz of my adhesions and endometriosis. I do drink green tea and lemon and ginger in water. My dr told me to stay away from green tea?

      I hope you manage to get sorted soon!

  • sam18386
    sam18386 Gem1384

    Posted

    Ooph you sound like you're having a rough time with your ibs!  I feel for you as my ibs never leaves me in that much discomfort, find out what this is, it's feasible if you're female that there is something gyneacological that is causing these problems, tip of shoulder right pain is often signs of miscarriage.  Insist your doctor checks all this out there is something amiss you're not been told as is typical with ibs patients - don't tell the patient until the last minute!
    • Gem1384
      Gem1384 sam18386

      Posted

      Hi Sam,

      Thank you for your reply. I don't think my pain could be pregnancy/miscaraigrelated. My hubby has had the snip after our 3rd baby. I guess it could be related to my endometriosis but I've had scans and they've said it is all ok.

      Im convinced something is definitely wrong with my right side under ribs but all tests are normal sad so I'm stuck!

  • junieju
    junieju Gem1384

    Posted

    Hi

    I have been suffering for 18 months, I live on sandwiches, as other food make me I'll, I seen a dietitian at the hospital she said eat 3 meals a day, no idea what I am going through, so what I need is a nutritionist , that can advise me and understand my symptoms, I see my gastro again in October so hopefully he can help, had many many tests, like you I am suffering from many mouth ulcers, pian discomfort in ribs bloating , the list goes on.

    My mouth ulcers seem To go and are back again.

    I can not remember when I was ulcer free.

    Hope you can get help soon

    Junie

    • sam18386
      sam18386 junieju

      Posted

      Hi junieju, that sounds right some days able to eat and some days not.  You can't just live off sandwiches - that's not good, it could be that the bread is causing all your problems!  Go back to your doctors and insist they do something for the mouth ulcers but equally they check everything out as to why you can't eat!  Do that first then we'll try to help you on here!
    • junieju
      junieju sam18386

      Posted

      Hi Sam

      I have been to see a mouth specialist, they are apthous mouth ulcers, it may be something to do with the gut, but I have to wait and see my gastro consultant in October to see what my tests reveal , I know my eating sandwiches is bad, but they are the only things that don't give me a lot of trouble.

      I really need a nutritionist to guide me through.

      Thanks for your reply

      Junie

    • Gem1384
      Gem1384 junieju

      Posted

      Thank you for your reply junie.

      Sorry you are suffering too sad it's not very nice!

      I hope you manage to get sorted soon!

  • lady40s
    lady40s Gem1384

    Posted

    All sounds so familiar gem ,

    Are you under a consultant gastrologist at the moment ? Did he diagnose IBS ?

    I'm awaiting next steps , I'm putting my faith in him as he is the expert ! Not me and that's all I can do .

    Was diagnosed several years ago by him for IBS , but recently iv got more concerned various new symptoms so went back for reassurance , for me health anxiety and stress playing a huge part in all my symptoms .

    Hope we both get answers soon

    • Gem1384
      Gem1384 lady40s

      Posted

      Hi Lady,

      Sorry you are going through it all aswell. Yes I'm under a consultant gastro at my local hospital. Had all the tests to exclude anything bad so now they are sticking to IBS. I can't push for anymore tests as I've had them all.

      I still haven't heard of IBS causing pain in the back and shoulders? Nor has my GP. This is something I will discuss further with my consultant at my next visit.

      I hope you manage to get sorted soon.

    • lady40s
      lady40s Gem1384

      Posted

      Thanks Gem ,

      What makes you think it's not IBS ? If that's what there saying ?

      Curious as we have similar symptoms ...

      Did you have a colonoscopy ? I had sigmoidoscopy 7 years ago and I always thought I should have had colon one , so I think I may push for that as for me I can't stop thinking something going on higher up ... This feeding my anxiety and the symptoms carry on ....

      When's your next appointment ?

      Good to know your not alone seems many have similar issues , hope we both get answers soon and can feel better x

    • Gem1384
      Gem1384 lady40s

      Posted

      I just had a sigmoidoscopy, they didn't feel the need for the full colon.

      They've said IBS but my pain radiates up into my back and should a which I know isn't suggestive of IBS. My pains aren't related to me passing a stool they are there almost constantly and get aggravated when I eat. It initially aches then stabs and then turns into a deep boring pain for several hours. Ibroprofen and paracetamol don't work at all.

      I had bad right side pain yesterday and at night and I woke up this morning and my left side is aching and stabbing before I'd even eaten. I feel like the 2 are linked?

      I really need answers! sad

    • lady40s
      lady40s Gem1384

      Posted

      Hi , yes my consultant said I didn't need one back then , my symptoms haven't changed a great at deal in the seven years but I'm noticing the bloating a lot more and indigestion .. Which has sent me back for r assurance or further tests ...

      Iv also had scans on ovarys , stomach , kidney , liver etc recently but came back ok .

      I do get left hand pain like sharp stabbing pain like stitch and I do get back pain at times I thought was all to do with IBS ...

      Hope your pain gets better

  • susand1408
    susand1408 Gem1384

    Posted

    By the sounds of the ulcers you are deficent in some vitamins. The acid reflux will also make that worse. Has your Dr tried you on some antacids.

    2nd has it been looked into to see if you have something like cfs (chronic fatigue syndrome) or Fibromyalgia. Ibs is often a symptom of them but you will suffer from other pains as well.

    Ibs can be hormonal. I have the depo contraceptive injection and it really helps to keep your hormones level.

    Symprove is fantastic for putting good bacteria into your stomach. It also seems to ease it. I never had one attack whilst I was on it.

    I hope you get help.

    • Gem1384
      Gem1384 susand1408

      Posted

      Hi Susan.

      I have been tested for all my vitamins and they are all normal. I've also tried symprove but didn't find much benefit from it and I tried it for a few weeks.

      The pain management consultant did say he thought I had widespread chronic pain syndrome (fibromyalgia) but as I was on his drug of choice he couldn't help me further. I have also been on gaviscon, ranitidine and tried omperazole but I didn't have any relief from the pain. It did help the reflux thou.

      I just hope it's IBS and nothing else being in diagnosed.

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