What options are available for decreased mobility after pinned capital femoral ephysis?

Posted , 4 users are following.

At age 13 (13 years ago) I had both my hips pinned due to a slipped capital femoral epiphysis on both sides. I have issues in mobility and flexibility and was wondering if there was any surgeries or treatments available to enhance my mobility. Thanks.

0 likes, 12 replies

Report / Delete

12 Replies

  • Posted

    Hi, Sorry to hear you are having difficulties.  If you go onto facebook SUFE Slipped Upper Femoral (Capital) Epiphysis, then it may be easier to send messages as there are a few of us on there who have had issues, and are trying to get help.  Did you have a very bad slip do you remember?  Did you have Avascular Necrosis?  Ruth
    Report / Delete Reply
    • Posted

      Hi. Thanks for your reply. 

      It was a bad slip on my right side I was pretty much limping rocking from one side to the other. I don't believe I had Avascular Necrosis. 

      What treatment options have you encountered thus far?

      I am only just looking into this now and scanning dozens of medical journals is a bit much. I'm going to see my orthopedic surgeon soon, thats if he's still practicising lol. 

      I'll definitely check out the facebook page. 

      Simon

      Report / Delete Reply
    • Posted

      My son was nearly 11 when it happened, he is now 13 and 1/2 and is still on crutches, as his slip was so bad he has avascular necrosis.  Our only option will be a hip replacement as soon as he has stopped growing, but just trying other surgery to try and put this off for a few years.

      Orthopaedics can be very reluctant to do the op as you are so young and replacements only last for so long, but if you are fit and not overweight, replacements should apparently last 10 or 15 years.  Problem is that you can only have a limited number of replacements.

      I am presuming that you now have arthritis in both hips and are in alot of pain.  I was in touch with someone recently who advised that if your consultant refuses hip surgery that go to one of the larger Orthopaedic hospitals and ask your GP for a referral there are second opinion.

      Where are you in the UK?

       

      Report / Delete Reply
    • Posted

      I am actually in Australia.

      I have no pain, just a lack of flexibility by way of rotation of the hip joint which stops me from doing a few things I would like to do. 

      I can't believe that, 13 years on, they still have not found a better treatment for this. All the best for your son. 

      Report / Delete Reply
    • Posted

      No, there is nothing, even the consultant had perthes disease as a child (causes a mis-shaped femoral head due to the blood supply being cut off and therefore arthritis in later life)and he was saying that everyone just follows the 'holy grail' to finding a permanent hip replacement solution.  Hoping to come out to Oz and visit family there soon. Good luck and do join the facebook page.
      Report / Delete Reply
  • Posted

    Hi, I'm sorry you had to go through this experience... I had both my hips pinned as well when I was 13. It's been 6 years now and I have not recovered full mobility but I did physio therapy once every week for 2 years and that immproved flexibility and mobility a lot!...hope this helps you.
    Report / Delete Reply
  • Posted

    My Daughter had both hips pinned. in November and even thou she is in no pain she has reduced mobility . Her consultant said she may benefit from realignment surgery when she is older. Maybe this is something you could ask your consultant. Please keep me posted on your progress.
    Report / Delete Reply
    • Posted

      Hi Angela

      Where do you live? are you in the UK?

      Why would she need re-alignment surgery when older? This would be hard to do if the growth plates have been fused together - as they would have been if they have been pinned, usually realignment is done during the SUFE operation (I understand).  If the leg is out of shape with the hip, it is very difficult for further operations and hip replacements when she gets older and has early onset arthritis (which usually happens with all SUFE patients unfortunately).

      Why don't you seek a second opinion from another Consultant?

      Good luck

       

      Report / Delete Reply
    • Posted

      Hi ,

      Yes we are in the uk we are uder Addenbrookes .

      My consultant explained to us that he does not realign at the same time as pinning as this can increase the risk of necrosis. If the slip is only slight some people do not need realignment . In the case of my daughter the left side was a much worse slip then the right and this is the leg she has problems with. She is still limping and her left foot turns out when walking she can not run . The reason my consultant gave for waiting is that even thou the surgery would be more compicated after the growth plate has fused it reduces the  risk of effecting growth as if he done it now she would stay the height of a ten year old for the rest of her life. We are tryingto hold on and help her to cope for as long as we can.

      Report / Delete Reply
    • Posted

      Hi Angela

      Do you want to go to our facebook page SUFE Slipped Upper Femoral (capital) Ephiphysis for some more advice?  That is just not right that she would not have continued to grow!  She would have lost growth at the growth plates that have been fused together, (at the femoral head), but she would still have grown at her knees/ankle growth plates.  She may have lost an inch or so (depending on how tall she would have been).  The consultant needs to do a specialist operation to re-align - and my understanding is that there are only othopaedic consultants who can do this are in Southampton, Bristol, London (presume Great Ormand Street), Notts, Royal Stoke University Hospital, Birmingham and Sheffield.

      Please do join the facebook group.

      Good luck

       

      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up