what’s worked for you???

Posted , 7 users are following.

hi there! im 24 and have been suffering with HS since i was about 12. my story is not uncommon from many of yours; years of pain, embarrassment, and incorrect diagnoses from countless doctors. it wasn’t until recently that I discovered what HS was but i’ve had no real understanding of how to best treat and live with it. there’s either too little information or a lot of the same regurgitated pieces.

my question is what has worked best for you all? what foods do people generally avoid? has weight loss help any at all? 

also im looking to make a lifestyle change while im still young enough to do it, so if there are any HS diet plans or anything please I’d really appreciate it!

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  • Posted

    Hi Katherin, I haven't been suffering with it as long as you have since I'm 19. I haven't had much of an answer from the doctors or dermatologists so this is just through experiments and what just worked for me.

    - I always have Neosporin in stock. It calms down the itchiness and irritation. You can use it if it's not opened but works better if it already popped.

    -One thing, band-aids. Get them in every size mainly the big patches. Become the band-aid lady. 

    -I know this sounds weird but liners help too. I wear a lot of skinny jeans so if you have the band-aid in a spot like your inner thighs then it might start to peel up even if they are the fabric kind. You could use a compression bandage over the band-aid but if you don't want it too tight or if you simply don't have any, Pantyliners work fine as well.

    -Even though The doctors didn't help much they did tell me to get some anti-bacterial wash and acne medication. Which helped a ton

    Of course, these things don't always work but they do help a lot when they do when I can't miss out on a class or have something important to do. I'm sorry, I can't help with the diet aspect though. I would love to know about a diet plan as well.

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  • Posted

    Hi Katherin, 

    I too have been suffering from HS, the bandaids are a great idea, I always have them handy. I recently changed the soap I use, I started going to the natural store and I tried Tea Tree Therapy, vegetable base and though it didn’t stop breakouts it greatly cut them down. 

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  • Posted

    Hi! So I suffered 19 years. I tried everything you could think of. Long story short, after many elimination diets I finally found my cause. Sugar. Well refined sugar. I can eat fruit. This was over a year ago and I haven’t had any more!

    I did lose weight in my journey, but it didn’t make much difference. 

    I had a doctor also prescribe clindamycin phosphate lotion I’d use when feeling one come on or dealing with a outbreak already there. It worked so well! Gone in just days! 

    But nothing beats just not getting them anymore smile

    My best advice is start elimination diets. That’s the only thing I’ve ever heard from anyone else who has seen great progress period.

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  • Posted

    Silva sulfadine is a great healing cream and helps with pain also.

    Wear loose fitting clothes that don't rub or Abrade your skin.

    Stay cool, sweat is the enemy.

    Bandages and showers...and antibacterial soap...staph germs cause breakouts and live all over your skin.

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  • Posted

    If you lucky like some of us, try the cheap over the counter zinc pills, with them you don't have to check your food intake or anything. But yes, I tend to agree that this is a diet thing. Also when I detect that I'm going to get a cold or flu and I know my immunity is going to work hard, I take the zinc pills. most of the time they stop my hs from flaring up. and if indeed I do get a few boils the zinc helps them to pop and heal fast.

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