What's wrong with me?

Posted , 14 users are following.

Hi,

So I've showed symptoms of M.E/CFS for around 4-5 years, and recently have had 2 doctors suggest that that is what it could be (in the proccess of being diagnosed) however 4 months ago, the symptoms suddenly got worse (went to bed feeling normal, woke up feeling awful).

So here's my symptoms-

- Wake up with aches every day. Get pains around abdomen when breathing in when I've just woken up. (This used to happen a few times a fortnight, and it was possibly a week before period for a few days)

- Aches get worse with excersise. For example- go for a walk. Later that night I have restless legs with aches and pains.

- Swollen Glands (neck, stomach, and I also have a painful lump in my armpit which I believe to be a swollen gland as it comes and goes monthly)

- VERY tired. Not just sleepy tired. Drained, can't ever be bothered to do anything. Also mentally tired.

- Terrible memory. Jumbling up words or saying stupid things.

- After doing something such as going out for a long walk or into town, I get wiped out for days. During these days, I usually have crashes within each day that usually last a few hours and are occasionally made better by a nap.

- During these 'crashes', I get hot flushes, sweats, and my heart rate shoots up. It has got to 104bpm at resting, and the highest it has been has been 142bpm, which happened when I came out of the shower and dried my hair.

- Occasional dizzyness

- No matter how much I drink, I'm always thirsty. I drink quite a lot.

- I pee quite a lot. The doctor also found white blood cells in my urine, which she said can be typical of diseases like M.E. She also said it could be a sign of chlamydia, so I took a test and it came back clear.

- Sometimes when I stand up, my head pounds (to my heart beat) and its quite uncomfortable.

- I can sometimes feel my heartbeat in my fingers, ears, palms, feet and sometimes (very rarely) my stomach.

- Tiny white spots/patches on legs. It looks like I've applied pressure to my skin in a tiny concentrated place. They aren't raised, lumpy or itchy. They are just there. 

- At night time, I notice that my hands and feet feel like they have really mild pins and needles. I think it is always there, but I only notice when there is nothing else to distract me.

- Have a mildly blocked nose quite a lot of the time.

- Eyes feel uncomfortable in the light. Also my vision has depleted (long distance, now have glasses) but only very slighty and that has been over a few years.

- Occasional ear ache

- Occasional tooth ache

- IBS

- Occasional back pains where the kidneys are.

- Breathlessness. It was suggested by another doctor that I could have asthma, however I keep forgetting to sort this out.

- General not feeling 100%

My doctor found that I was defficient in Vitamin D and also Iron. I have been taking Vitamin D supplements (5 x 20mg Fultium- D3 800IU) since 6th June 2014, and 1 Hemaplex iron tablet per day (for about 2 weeks).

Over the past week, I have got some new symptoms-

- Swollen glands are very sore around neck and right armpit. Hurts to swallow because they are swollen, however I looked in my throat and there is nothing that looks sore. No redness or white bits etc. The pain extends to my jaw/teeth and ears. My ears have also been slightly wierd. Almost like when you get water in and they have twinges when they are unblocking. It doesnt hurt but it just makes a wierd noise.

- Ache in middle of chest when breathing in. Happens after eating, and has happened the past 2 days.

- Nausea (iron tablets) and bloating.

- Had watery eyes 1 day last week, although it wasnt when it was sunny, it just happened and I think I irritated my eyes with makeup.

- White spots on legs look more prominent.

My crashes have actually gotten less frequent and I have done a lot more than normal this week, however I do feel more unwell these past few days.

Please help me find out what's wrong with me!

(Also, renal function and liver came back normal. All other tests I have done have come back normal minus the vitamin D and iron. I have begun to feel slightly better with the Vit D tablets, however I was hoping to see a much bigger difference as I still feel unwell)

 

0 likes, 20 replies

20 Replies

Prev
  • Posted

    I can't believe you are the first person who has almost exact same symptoms as myself . How many times I have reeled of this list to g p s and specialists!!! All tests for all sorts negative !! I was 'diagnosed' if you can call it that , with CFS . Now , after an ultrasound on thyroid I have been told I have not got CFS/ME. Nor have I ever had. It! I have an autoimmune disease which attacks the thyroid.!!!!  19. Years of suffering !  Thyroid results as I have just found out are , often hidden with this .i am sorry if this is not you but I would say ask for anti thyroid antibody test and anti- thyroperoxidase test if you haven't already had them . It may just be you. , or possibly others on this site searching for answers . I was told in no un certain terms , for years, I have not got a thyroid problem and sent away with a flea in my ear !!!! Good luck.
  • Posted

    Just a suggestion, if you're still suffering, and still not sure what is exactly wrong with you? Get a gene test done, you may have a genetic disorder 
  • Posted

    Are you in England?  From other posts I understand there is a clinic that specializes in ME in Liverpool.  That would be a good place to start, or research clinics/doctors that specialize in ME in your area.  It sounds like there is more than one thing going on with you and you need someone to sort through the symptoms methodically one by one.
  • Posted

    My dearest Peachi, 

    Sweetie, you have something nasty going on... how are you doing now, my sweetheart? Sense it has been about a year now, I just want to make sure no leukieama is present.         Love, Han Eech

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.