Posted , 4 users are following.
I'll try not to drag this out. I was prescribed omeprazole 15 years ago and took it religiously for 8 years. Nobody ever suggested I should stop taking it. Right from the beginning, my RBC count started to fall. I didn't know about the connection between stomach acid, B12 absorption and RBC numbers. After 8 years I decided I'd had enough of taking medication and found I was fine without the omeprazole, but my RBC count still continued falling and nobody said anything about that either. Then I discovered the connection between RBC count and vitamin B12. Two weeks before my next scheduled blood tests I started taking sublingual B12 and for the first time in 8 years, my RBC count went up by 2 points, but when I suggested that I could have B12 deficiency I was told my test results for B12 were normal. So I started taking B12 sublingually and did ok for a couple of years, but now I find I need to take 8000mcg daily to feel normal and I have never managed to get my RBC count above 4.1 from a low of 3.8. On top of that, four months ago my tongue became swollen and burns or tingles if I cut back on my B12 dosage at all. My GP and a specialist both say because my serum B12 is high, I cannot be B12 deficient.
There seems to be a huge amount of ignorance amongst the medical profession regarding blood test results for B12 deficiency. It states on this site that it causes either low RBC OR low haemoglobin...not both. Of course my haemoglobin levels are within the normal range, so in "their" opinion I don't have B12 deficiency.
I am just about ready to have a mental breakdown over this. I don't want to go blind, become crippled or die because I can't get a diagnosis! I live in NZ and we can't buy B12 injections here otherwise that's what I'd do.
I can't help wondering that there might be rare cases where some people can't absorb B12 from the blood and must have it injected into a muscle but of course what would I know? Again I would probably be laughed out of the office if I dared suggest it, but I just wish doctors would listen to their patients and listen to the symptoms they describe. In the 'good old days' before anybody thought up the idea of blood tests, doctors had to 'read' patients' symptoms without relying upon numbers on a chart. They might do well to go back to that method today IMHO.
Does anybody have any suggestions about where I go from here?
0 likes, 33 replies