What to do.....???
Posted , 11 users are following.
Hi again...i've posted a few times on here but not for a while. I had changed gp's and after a couple of appointments we seem to be singing from the same hymn sheet. I was in quite a bit of pain and really fatigued so upped my pred from 7mg - 10mg and although i still had niggly aches and pains i was satisfied i'd done the right thing. Over the past couple of months i've had LOADS of different blood tests...the first really since diagnosed...they all came back normal except a liver one which has been looked into and then during the week i was told my vitamin D level is VERY low 25..(docs words not mine) she's told me to wean off pred and alendronic acid as the Vit D deficiency must be to blame as no other test points to PMR...so this week i'll go down to 9mg next week 8mg and so on. I said to her what about the pain and she said pred isn't a painkiller so it won't make any difference, hopefully the vit d capsule i've to take will kick in and i'll feel better. Steroids just make people 'feel' better not make the pain go away. I have a horrible feeling i'm going to very quickly feel awful...i'm trying to keep positive but i don't have much hope
0 likes, 28 replies
iellen32 IssyR
Posted
Our positive attitude must walk together with our treatment, correct diet, etc, etc.
I am sure you and your doc will let you get the expected result.
Wishing you the best , I will keep following this discussion, so please let's know how things evolve!
Silver49 IssyR
Posted
iellen32 IssyR
Posted
Stay well .
Take care.
kadge IssyR
Posted
If you have doubts please put up a fight don't let them fob you off 12 months of pain is not fun
EileenH kadge
Posted
Try a different GP first and if that doesn't help, tell the GP you want to be referred to a rheumatologist. That may have problems too of course - but they might at least look for another reason for the symptoms you have.
IssyR
Posted
IssyR
Posted
but life just now is difficult, in fact i'd say a battle
i feel like i am drowning, in a sea of different pills
all prescribed by doctors, to combat all my ills
the very act of taking them, goes right against the grain
i wonder if i'll ever feel, like a 'normal' person again
Is it PMR, should i be on pred, or a deficiency of vitamin D
whatever it is, my feeling's this. it's all just pain to me
i try so hard to keep my head, from ducking under water
i know i've folk who love me, my grandkids, sons and daughter
So for them i'll soldier on, in the hope that things improve,
who knows this vit D supplement, may be the perfect move
diana21296 IssyR
Posted
iellen32 IssyR
Posted
bones, you name it.
I probably already sent you a reply today. Tons of emails!
Take care
🌸
Elijo IssyR
Posted