What to do , can any one tell me what they would do please
Posted , 9 users are following.
3 weeks ago because my neck and shoulders were not good and my blood counts go up and down between 22 and 40 .I asked a different doctor , as mine was away her advice .
Go back up to 15 mg pred , for 3 days . Then drop to 10 mg and stay at that for 4 week .
The first three days were great , then I went down to 10 mg .Since then my neck and shoulder pain have gone back to bad. . Now i have alwayssuffered from Neuralgia and having a really awful time with that now . My view is that the shoulder pain aggravates the neuralgia .
If any of you were in my shoes would you go back to 15 mg pred for three days then drop slowly as I would by .5 mg every 7 days . I had been on pred starting at 15 mg since November 15 . My Polymialgia trip started then .I had got down to 9.5 before I saw the doctor about the ongoing symptoms . Absolutely in despare, not one doctor advises the same .I see a neurologist in a week , but no doctor will send me to a rhumatolagist . When I ask why I am told the condition will work its self out in two to three years .Come on guys some one cheer me up I know you are good at that Carol
1 like, 50 replies
gillian_25383 carol16456
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constance.de carol16456
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None of us like going up, I learnt my lesson the hard way. I refused to believe I "needed" to go up and suffered accordingly.
Good luck!
Regards fr C. 💐
tina-uk_cwall carol16456
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If during your 2 weeks on whatever dose you are on, and it could even be 15mgs you do not feel as well as you did when you were on that dose originally stay on it a bit longer then reduce. Good luck. Regards, tina
david14272 carol16456
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carol16456
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constance.de carol16456
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C.
david14272 carol16456
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lodgerUK_NE david14272
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I know about Club Zero, I am in it. Have you read the stuff on that thread.
david14272 carol16456
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gillian_25383 david14272
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carol16456 david14272
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Carol
ptolemy gillian_25383
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carol16456 ptolemy
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carol16456
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gillian_25383 ptolemy
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ptolemy carol16456
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