What treatments/medication have you been given?

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I have had HS breakouts on my butt cheeks for about 10 years. Does anyone else get breakouts on their butt? It's extreemly embarrasing. I finally got diagnosed about 2 years ago and the doctor prescribed roaccutane. It seems to be slowly working but I still get breakouts and it hasn't cleared much in two years. Is anyone elso on roaccutane? I am keen to try a natural remedy, any ideas? 

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  • Posted

    I have two lesions on each butt cheek.  I've been trying topical clindamycin combined with oral minocycline -- with no relief.  My dermatologist did inject them with steroids, which hurt like hell when she did it, but about an hour later created incredible relief of pain.  This relief has lasted about three weeks now...but the lesions are still there and are still weeping.  My personal preference will be to have them surgically removed.  However, I know there are participants on this board that have some natural remedies that have worked for them in some impressive ways.  I'm sure you'll hear from them too.  Best of luck.

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  • Posted

    Hi Amy,

    I've been there with them on my butt and armpits and groin. It's an autoimmune disease and I got it under control through diet by avoiding nightshades. Many people in this forum have found the same. Have a google for autoimmune diets

    Before that I ended up in hospital with a pilonidal cyst. Have a quick read about pilonidal because mine was left undiagnosed for a decade due to the HS.

    I did 12 months of high dose roaccutane and I think it helped slow the development of new ones but it's a very hit and miss treatment.

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  • Posted

    Hi Amy, Just read through this forum, some things work for some people, zinc works for me, Humira is also used, but much more expensive....
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