What was the main reason your hysterectomy was needed?

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Hi

Ive been diagnosed with a few ovarian cysts that are sometimes described as complex, sometimes dermoid and sometimes haemorrighic (sp?). My CA125 results shot up last month so my Gyno sent me for a CT scan which i am getting the results from on Monday.

I havent been able to eat or sleep through all of this due to the worry of cancer and have made myself quite unwell stresswise even though Ive tried desperately not to.

Im actually really hoping they decide to take everything out as i dont think i could stand this torment again but im not sure if thats the route they will take if theres nothing else to be seen on the CT scan other than the cysts they know about.

Could anyone give me a clue as to the main reasons a hysterectomy is given and do you think if i opt for one im likely to get one?Im 38 and have grown up children so wont want anymore xxx

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11 Replies

  • Posted

    Hi,

     I'm having one on 6th October mainly for very heavy periods and pain. I had raised ca125 as well. I'm 42 and have children . My issue was I got a blood clot in last two pregnancys so I'm not able to have any other options like pill etc to help periods. Did try mirena coil but I bled constantly.  I'm not sure the reasoning a hysterectomy would be offered. With myself I think it was more no other options available ,

            Love Louise x

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  • Posted

    If you are sure you don't want more children then I would push for an hysterectomy.  I had one at the end of June because of a large cyst and it was the best thing I did, no more worry of cysts, no more worries of womb cancer or cervical cancer.  The operation went great I was scared stiff originally but if I had to have it again wouldn't bother me a bit.  The only thing I can think of why they might be skeptical is that you won't have been through the menopause yet but I already was post menopausal so it was an easier decision and my consultant recommended it.    

    I had a cyst when  I was 28 and my CA125 was high apparently and I was told it could mean cancer.  I don't know how high cos I didn't ask but I was worried sick and I had the cyst and left ovary out and thankfully everything was absolutely benign so the CA125 test isn't a reliable test so please try not to worry xxx

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    • Posted

      Thankyou Janet. Thats very helpful. Im certain i dont want more children as my 2 are 20 and 18 so Im 100% sure im done with all that lol.

      I think Im going to go for the hysterectomy if at all possible. Although i know the CA125 is notoriously unreliable its what has frightened me the most sad

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  • Posted

    Hi I had mine at 46 for fibroids had no choice really but best thing I ever did. Hope that helps 
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  • Posted

    Hi I also did not know anything about hrt when I had the hysterectomy but assumed the ovaries would keep the hormones going. That's what I understood from my gynaecologist . I had the operation and just carried on as normal.  Having read now what ladies have been urged to take after a hysterectomy I'm so pleased I wasent offered hrt then as I really don't like the side effects and when you stop taking it you still have to go through all the symptoms you have stopped. 

    It's a personal choice and if I'm honest I had two huge wobbles where I would have taken anything to stop the symptoms I was experiencing but the things I tried my system didn't like so it was short lived less than a week . Now I read up on what hrt can give you as sude effects and I personally don't want to go there as I could be the one who gets the side effect!! Or not ! But that's my choice. For others it's the best thing they ever did. We all have to make a choice which suits how we feel. Hope that helps. 

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