what was your dizzy picture, how long did you have it? p...

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what was your dizzy picture, how long did you have it? please share your experience of the epley

[i:0b72985ab9]This message was automatically imported from the original Patient Experience[/i:0b72985ab9]

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  • Posted

    In January 06, my family and I suffered an agrivated burglary, the result was I recieved several blows to my head. Things seemed to settle over the first couple of months, a couple of headaches here and there.

    I then started to feel dizzy, lying down or getting up, felt like being drunk! things took a turn for the worst when I started to stumble around, having to grab hold of things to steady myself, then came along the tinitus just to agrivate things further.

    I saw my doctor who refered me to ENT, I had a hearing test (strange I thought) seemed also lost part of my hearing also. Next came the consultant, he concluded that I had positional vertigo.

    I was refered for an epley manouvre, did I feel ill after it! It seemed to work for me for a couple of weeks, however, the symptoms persited, the manouvre was again repeated.

    Things had settled after this second attempt, however, in feb this year things have gone down hill again.

    Revisited the hospital to have further treatment, irrigation to the ears to stimulate balance, painful, still feeling dizzy and now being refered to a further specialist. Where will it end?

    The tinitus will always be with me, however I am being fitted will a hearing device to create white noise to distract me from the tinitus. Hearing is also irripairable, so got to live with that also. only hope things improove. Thanks Mr Burglar!!!

    [i:e47d301e7a]This message was automatically imported from the original Patient Experience[/i:e47d301e7a]

  • Posted

    I had the Epley 3 days ago and have been very unwell. Vomiting and jumpy vision, feeling exhausted. Have been sleeping most of the time.

    Is it normal to feel this bad after it? Specialist told me there would be no side effects.

  • Posted

    Very sorry to hear about these stories. I have had this dizziness since my mother died in 1997. It was a very stressful time. I was driving a bus load of passengers at the time when the whole world violently started spinning out of control. I did manage to drive back to the bus station though. I was sick with it the first time I got it, I saw a doctor at the hospital who diagnosed me with suspected vertigo after a number of hearing walking and touching my nose tests. The problem is that it comes and goes with no notice.

    I did not get it again until last year twice and now again. Been off work for 2 weeks with it. Every time I see a doctor I get some Betahistine Dihydrochloride tablets. I think they are supposed to reduce the symptoms of the dizzy feeling. Maybe they do, maybe they don't, I don't know. I have also been given some Proclorperizine by one doctor, then told to stop taking them and switch to the Betahistine. I feel like some kind of guinea pig. I had to laugh when I found out the Procloperizine is also used for schizophrenics according to the leaflet.

    But my question is, is this going to affect me for my whole life? I have a job, a family and a mortgage to support. When I get this I become almost disabled for weeks at a time. Every time it happens it seems to be for a longer period of time. It is concerning to say the least. The most irritating thing is that nobody seems to know how to cure it. Not with all of our "modern technology" and in our "advanced civilisation".

  • Posted

    I have been on the tilt a whirl for almost 4 weeks. 5 trips to hospitals, doctors' offices. I have been told unless I continue to take the betahistine, which gives me dreadful side effects, it will continue. The head exercises help a bit.

    I have a call into a specialist, for which I needed a referral. I am not very optimistic at this point. Considering the number of people who post here, it obviously is a widespread medical problem.

  • Posted

    Oh yes and I had valium prescribed as well.....it's a sedative for people with mental disorders.
  • Posted

    Hi everyone

    You all have my sympathy because dizziness is one frightening thing. I've never heard of 'The Epley' and it doesn't sound very inviting......

    I was diagnosed with Benign Positional Paroxysmal Vertigo a few days ago, and I'm already fed up with it! I can't find any position where I can be really relaxed any more because I am afraid to move my head in case it brings on the dizziness. I have the worst of the symptoms at night, particularly when I turn my head to the right. The GP has prescribed physio exercises but I haven't felt well enough to do them just yet. I also suffer from hemifacial spasm on the right side of my face and so this new thing feels like an illness too far.

    I've had one previous experience of labyrinthitis (really horrible with sickness and an inability to even move in bed for fear of the world turning and being sick). But this only lasted about a week, so I am hoping this will be the same. Has anyone been given Stemetil for their dizziness I wonder? It did the trick with my labyrinthitis. Also, has anyone tried flying (on an aeroplane!) with the dizziness. Am due to go on holiday in a couple of weeks and my husband may divorce me if I'm not well enough to go.

    Hope you all get some respite from your problems. Any tips would be appreciated.

    Cheers and best wishes, Roseann PS This won't seem to post - damn!

  • Posted

    Hi everyone

    You all have my sympathy because dizziness is one frightening thing. I've never heard of 'The Epley' and it doesn't sound very inviting......

    I was diagnosed with Benign Positional Paroxysmal Vertigo a few days ago, and I'm already fed up with it! I can't find any position where I can be really relaxed any more because I am afraid to move my head in case it brings on the dizziness. I have the worst of the symptoms at night, particularly when I turn my head to the right. The GP has prescribed physio exercises but I haven't felt well enough to do them just yet. I also suffer from hemifacial spasm on the right side of my face and so this new thing feels like an illness too far.

    I've had one previous experience of labyrinthitis (really horrible with sickness and an inability to even move in bed for fear of the world turning and being sick). But this only lasted about a week, so I am hoping this will be the same. Has anyone been given Stemetil for their dizziness I wonder? It did the trick with my labyrinthitis. Also, has anyone tried flying (on an aeroplane!) with the dizziness. Am due to go on holiday in a couple of weeks and my husband may divorce me if I'm not well enough to go.

    Hope you all get some respite from your problems. Any tips would be appreciated.

    Cheers and best wishes, Roseann

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