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What worked for me

Posted , 4 users are following.

aleakay
aleakay

I am a 23 year old female. I have suffered from HS since puberty (about 11). I get abscess under my arms, inner thighs, and sometimes my bum. I have literally tried EVERYTHING. So little is known about HS. I had doctors telling me to take bleach baths, lose weight, stop smoking, use this cream, wash with this. Blah blah blah. I did ALL OF THAT. I lost 80lbs. Have not touch a cig in a year. Long story short NOTHING worked. However, I started taking birth control about 6 months ago. I have had NO new abscess. I literally went from going to my derm. every few weeks to get cut; to nothing. I still have abscesses. But they are significantly better with no new ones. My derm. also perscribed me Humara. I start the injections next Tuesday. Just wanted to share in case it helps someone! I will let you guys know how Humara works with me. Don't feel like a alien. More people have HS than you would think. Cheers <3

1 like, 8 replies

8 Replies

  • tracy30978
    tracy30978 aleakay

    Posted

    I'm new to this I have suffered with HS for years and only got diagnosed a few weeks ago, I get abscesses under my armpits,groin and my bum (which has been there for weeks)🙁 My doctor did advise to give up smoking and also change my diet? To what? Quick question... what happend at your 1st dermo appointment?

    • aleakay
      aleakay tracy30978

      Posted

      Honestly, giving up smoking was the best thing I ever did. I will never go back. It didnt seem to help much with my HS but I feel like a brand new person. Same goes with eating clean. You have more energy and feel all around better. I eat three meals a day and two snacks. My meals consist of a lean meat (Chicken or Turkey) and veggies with no more than 75 G carbs. This didnt help me with my HS but I did loose 80 lbs.  At my first derm app. they looked at the area(s) I was having problems with. My derm started me on antibiotics and anti-bactirial washes (. You have to go through EVERYTHIING to get prescribed Humara. I hope this helps (:
  • anne52249
    anne52249 aleakay

    Posted

    Someone  told me humira is a miracle with HS , I've been referred  for it too good luck be interested to hear how you find it 

    • aleakay
      aleakay anne52249

      Posted

      For sure! I meet with my nurse Tuesday to get my first for injections. I am nervous but sooooo excited! Let me know how it works for you as well (:
  • amy61071
    amy61071 aleakay

    Posted

    Keen to hear how the Humara works for you! My dermatologist put me onto birth control a while ago but unfortunately it didn't do anything to help with HS so stopped taking it. It's upsetting how little doctors etc know about HS and mislead you. I've literally tried everything as well and not much has worked. I stopped all medication and am trying to heal it the natural way which is working ok. Good luck!

    • aleakay
      aleakay amy61071

      Posted

      Sorry to hear it didnt work sad

      Sometimes we need nature to just do it thing.

      Good vibes your way!

       

  • tracy30978
    tracy30978 aleakay

    Posted

    Thankyou for replying, I've been on antibiotics for the last few years anthe doctor has just prescribed me

    the antibiotic wash.What kind of

    Foods did you cut out? Was sugar

    one of them?

    • aleakay
      aleakay tracy30978

      Posted

      I just completely changed the way and what I eat. I do eat less sugar for sure. I don't know if that was a huge trigger for me though. I am hopeful about Humara. I will keep everyone posted about the journey with it. I wish more was known about this. It sucks for sure.

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