What would you do?
Posted , 9 users are following.
Hi!
28 years old now. Surgery 07/2018. Positive Dysphotopsia + PCO. (F......) Tecnis monofocal.
My options:
- Do an exchange and then YAG.
- Do an exchange + polishing the capsule.
- YAG, no exchange, dealing with PD for the rest of my live.
In case of 1) or 2), what IOL would you suggest? I consider either the Sofport AO or Aspira aXA.
However, there's no much data about Aspira. It is a 7 mm optic hydrophillic IOL, but not sure if that would not cause PD either. It's just a very simple logic - the bigger the better. Nothing more.
Soks, what do you think? You also considered going to Germany. I live nearby and am puzzled whether to go there and have it exchanged for the Aspira or fly to Safran. Did you find any medical center / surgeon in Germany? I asked one guy but it was much much more expensive than in the US. Like almoast two times more...
Regards
1 like, 27 replies
RonAKA ad12345
Posted
I think the unfortunate reality is that there are competing factors in the design of the lens that can complicate dealing with this issue. The whole subject seems to be somewhat controversial. In general it seems that thicker, lower refractive index lenses are said to be better. Round edges are also said to be better, but they can promote PCO. You may find this article of interest if you have not seen it before.
.
Review of Ophthalmology Michelle Stephenson, Contributing Editor PUBLISHED 7 NOVEMBER 2017 Dysphotopsia: Not Just Black and White
ad12345 RonAKA
Posted
"Round edges are also said to be better, but they can promote PCO." - There's no round edge IOLs on the market and I also mentioned that I already have PCO...
soks ad12345
Edited
#2 is not really an option. i asked that question to safran and he said polishing while doing exchange will not get rid of my PCO. what PD do you experience? do you see the reflection of light off lens edge in the dark? do miotic drops help?
Aspira aXA is tempting. i do not know who in Germany or europe is skilled at exchange and could use that lens in an exchange. it will help my PD for sure but it would be a monofocal. so the strategy with Aspira that i would use for myself would be set one eye at -0.75 and the other at -1.5. i wish they made a 7mm trifocal or a edof.
at this time i am thinking flying to europe to get synergy in the unoperated eye or getting pan optix and living with the PD. i am still holding off the YAG but i wont be able to maintain status quo much longer.
ad12345 soks
Posted
Soks, two questions:
For me it's super difficult to find someone. I'm afraid that google is not enough.. Another thing is that it's ultra expensive for me (I asked one surgeon about his fee). Like almoast all savings that I currently have.
soks ad12345
Posted
at night or in dark when the pupil dilates, every light source will get an outermost ring. this will also cause the entire iol to light up. this ring is in addition to normal symfony rings. it will not form if u take miotic drops or are in a lighted room. miotic drops dont make symfony rings go away but those are not bother. i should probably draw this to explain. that 1mm extra iol will make a huge difference. i am not tracking on hydrophyllic or hydrophobic so cannot comment on it.
university of iowa is #6 for opthalmology in US. a doctor friend recommended thomas oetting there as i live close to there. when i contacted him he said 'if i were his brother he would send me to safran'. i also see shannon wong doing a lot of exchanges. i lost the name but someone had mentioned a exchange specialist in europe on here. and there is also some doctor in sunrise, florida.
safran had told about his fee but i forgot. it was similar to cataract surgery cost.
rwbil ad12345
Posted
"What would be your strategy when looking for the right surgeon"
Your situation is one I would recommend finding a top rated Ophthalmologist, maybe if a Retinal Specialist to first make sure there is no other issue going on.
I live in the US, but some of the Top US ophthalmologist travel around the world teaching and giving speeches and do clinical trials with other ophthalmologist.
I would look at the clinical trials and see the doctors from your area and email or even call them. Or you can do the same with American Doctors and see if they have someone in Germany they would recommend.
Companies use the top ophthalmologist do to their clinical trials.
The other site med help has an ophthalmologist on there that usually replies and maybe he can recommend someone to you.
soks ad12345
Posted
have you had YAG yet?
soks rwbil
Posted
vance thomson is in my city but they disqualified me for any trial as i already have a symfony in one eye.
ad12345 soks
Edited
No, but it cannot stay that way. I mean I have to decide soon, max 3 months. My visual quality decreased from 20/20 to maybe 5-10/20 due to PCO. Interestingly, it happened in the matter of 2-3 months. Still there's no advice how to look for a surgeon. It is not as "straightforward" as in the US. You cannot just find someone's email or phone number, because:
soks ad12345
Edited
you can ask other doctors on who they recommend for lens exchanges. check with romesh angunawela at moorsfield eye hospital in UK for his recommendation. you can send a query from their website. if not message me and i will give you his email.
he has replied to all my emails except about lens exchange though.
safran will answer your queries on his youtube videos comments as well. he has replied to me without knowing i am his patient.
also shannon wong said that risk of lens exchange is only as much as the cataract surgery when the capsule is intact (YAG not done)
rwbil ad12345
Edited
I am confused. What exactly is your situation. I thought you were a German Citizen looking for a Top Ophthalmologist in Germany. Are you a US citizen living in Germany? Some of the top Ophthalmologist in the world are in the US, so not sure why you are looking to go to Germany.
ad12345 rwbil
Posted
I am a Polish citizen who lives in Poland, which is located next to Germany.
ad12345 soks
Posted
Soks - My expirience is that none is interested in sending any reply to my emails. Safran is very nice, but he doesn't know anyone in Europe (like most of US guys tend to). In summary, there's no clear way to start. The majority of surgeons probably know someone within their country, but not abroad. Moreover they don't repy to emails or there are no personal emails available.
soks ad12345
Posted
i just sent you romesh angunawela's email. try asking him.
rwbil ad12345
Posted
Here are a couple of ideas you might try.
Check with organization like ASCRS. I have seen speakers from different countries speak at their meetings. Just doing a quick search I found DR. Thomas Kohnen (Germany) and Klaus N. Ditzen, MD (Germany) from that site.
Check with the manufacture for the IOL you are interested in using as a replacement. When I had my left eye done I emailed Tecnis to find out which doctors they recommeded in my area.
rwbil
Posted
Doing a quick search I found:
ESCRS Academy in Warsaw took place on Friday, 7 June 2019
Might check out that article and get some names you can follow up with.
ad12345 rwbil
Edited
Thank you. However, I think that although many of these guys are famous etc., they are not automatically qualified to do an exchange. In my opinion such a procedure requires extra skills and proficiency. I guess that the best way to find someone is to get a personal recommendation. What do you think?
rwbil ad12345
Posted
I agree famous does not make them a great surgeon. But IMO doctors that do clinical trials, write papers and go to conferences to give speeches tend to meet other doctors doing the same.
So they might have a recommendation that you can pursue.
Another option is if there is a top world renowned hospital near you. Like here there is the Mayo Clinic.
I know healthcare is tricky in other countries, so I don't know the rules and how it works.
hilary13182 ad12345
Posted
Hi. I do not have an answer to your inquiry about looking for an experienced surgeon, but I wanted to ask you about your fast-growing PCO. What does it do to your vision? Has it grown steadily over months? How did the Positive Dysphotopsia occur? Thanks....
ad12345 hilary13182
Posted
Positive Dysphotopsia has nothing to do with PCO. PCO has it's own set of sympthoms, like blurry vision, decreased acuity and big haze around spot lights. Again, this is not PD, it's more like looking through a semi-transparent plastic material. It has developed over 2-3 moths.