When do you know if you need to take medication everyday to control outbreaks?

Posted , 4 users are following.

Since I've only had one outbreak, (as far as I know anyways), how many outbreaks would I need to have before I ask my doctor about suppressive therapy? Or how often would they need to be? So far she has just given me Valtrex to use in case of another outbreak with 3 refills.

1 like, 9 replies

9 Replies

  • Posted

    This is a good question. I'm curious as well because my doctor put me on suppressive therapy immediately. Idk if it was because of how bad my first outbreak was.
    • Posted

      My first outbreak was so mild, it went away on its own and was not even bothersome so i think thats why she wasnt too concerned with the medication. my sister has had GH for the past few years and her first outbreak was horrible. she was put on suppressive therapy immediately. she doesnt always take it and she does still get outbreaks frequentely but they arent bad now.
    • Posted

      I've considered whether or not I really need it. But if there is any risk of me getting another outbreak like this..I'll take it. I have a friend that has it as well and she isn't on suppressive therapy. She had a few after her first but they decreased over the years as well.
    • Posted

      I will go on suppressive if it gets to that point where I need to but I'm hoping i wont need to cause i really hate to have to live on a medication for the rest of my life sad
  • Posted

    If you are in a relationship with a seronegative partner who wants to lower their risk of acquiring genital HSV (or, I suppose, if you intend to be sexually active without a relationship), then you should go on daily suppressive therapy, otherwise the advice is to see how your body naturally manages HSV in the first year, with antiviral meds only used to pre-empt/treat recurrent outbreaks (episodic therapy).

    If outbreaks are frequent, like 6-10 per year, then low dosage suppressive therapy is indicated (e.g., 500mg valacyclovir daily). If over 10 outbreaks per year, high dosage suppressive therapy may be necessary (e.g., 1000mg valacyclovir daily). That's what I've read at least!

    • Posted

      Good to know. My husband will need to get blood test and all that cause as far as i know he hasnt had any outbreak but he does work out of state for 6 weeks at a time. So currently he is not home. But if i have it, i am assuming he has it as i havnt been with anyone else.
    • Posted

      It would certainly be more convenient if he has the same type as you! But best to never assume with HSV. It can be totally asymptomatic as well.

      One more thing to note: For HSV-1, daily suppressive therapy is not usually recommended, unless the person is very unlucky and has multiple outbreaks. Suppressive therapy is mainly for HSV-2, which tends to recur more *and* shed more, even without symptoms.

  • Posted

    I had my primary outbreak and was treated with valacyclovir 2x a day for 10 days. I went back for a follow up appointment with my gyno before the 10 day course was over. She then told me she wanted to put me on valacyclovir once a day for a year for suppressive treatment.. She said she wanted to because of the severity of my primary outbreak. She said after the year I could choose to continue on the medication once a day of of course 2x a day for 5 days in the event of another outbreak. I think it really just depends on your doctor and how they go about treating it. If suppressive therapy is something you want or feel you need I would discuss it with your doctor and make sure she knows that is what you want if you haven't already. Many people I've read have managed without suppressive therapy but making sure to have a good diet and a high intake of lysine.
    • Posted

      Yeah my doctor didnt even seem very concerned about getting me on meds as I was tested twice for it over the course of 2 weeks and she never decided to treat me for it anyways until the results came back.  By the time the results came back, it was already healing. It was so mild she told me i dont even need to bother taking anything until i get another outbreak. so i guess it does depend on the severity of it. if for some reason i keep getting outbreaks frequently,i will mention getting put on suppressive therapy.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.