When I’m active my hands get hot and veins in forearm feel like they’re going to burst. Please help.

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I have reynauds as well. I can deal with the numbness and frozen fingers but what’s getting worse by the day is when I’m active, cleaning or excercising my hands get hot and I have shooting pain and throbbing  in my forearm. Almost like they’re going to burst. This is making me so depressed. I can’t find anything on the Internet about it. Does anyone have this! 

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  • Posted

    You may have secondary Raynauds, which is often more unique, difficult to treat, and worse than primary. 

    I get this too. I don’t think there is much we can do except to move more purposely and in a more relaxed manner, which can be done even if you are exercising vigorously. There are YouTube videos on stretching the hand and fingers that I find helpful. Make sure you’re not dehydrated and you don’t have other conditions, such as tendinitis. 

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    • Posted

      You get this too? When your active does it hurt to hang your hands down or pick up stuff off the floor because they throb, shooting pain (along with the red hot hands)? I haven’t found anything on the Internet about this. What kind of specialist would help treat things like this?
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    • Posted

      Yes definitely. My hands throb at times when I am active or upset so I think the blood flow gets disordered and not just narrowed with Raynauds. Essentially all Raynauds is is vasospasms. So it would make sense that with time it could cause other things to spasm too. It just doesn’t feel quite like a spasm because it’s coming from the vessels. 

      I cannot help you with a specialist. I have Raynauds because I have cerebral palsy, so there is a lot of stigma and medical mistreatment and misunderstanding surrounding it. Honestly sometimes the best treatment for me is a giant glass of water and a pint of Guinness. I really like baths with epsom salt. You can sit in the lukewarm bath while it’s running and make it hotter and hotter so it doesn’t shock your Raynauds. 

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  • Posted

    Could it be erythromelagia? I have it in my hands when I get hot, palms and fingers turn bright red and they burn. It is much less common than Raynaud's phenomenon but when it does occur, it can occur in tandem with Raynaud's.

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    • Posted

      Thank you. just looked it up. I sounds very similar. It’s the closest thing I’ve read that describes it. The pictures look like it’s more of a swollen hot condition. You have this too? Mine get hot but my veins in my hand get big and I can’t hang my hands down or pick up things off the floor. I have to raise my hands above my head or run them under cold water. So depressing. I feel like I’m constantly either running my hands under warm or cold water at different parts of the day.  
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    • Posted

      In the last four years, Raynaud's has overtaken erythromelagia and 'episodes' are further apart now . One thing I wanted to mention, have you experienced a change in the way you experience heat because of erythromelagia? For example, I now experience quite tepid tap water as very hot water and it's increasingly difficult to use a hairdryer because of the burning pain it causes to the fingers. Let your doctor know that you have the two conditions running together.

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    • Posted

      I have not seen a doctor yet. What kind of specialist do u see for this? I don’t experience what your describing. I have reynauds and also they’ve been getting so hot and been throbbing when I’m warm or active. I have to hold my hands up or under cold water. I’m only 37 and It’s depressing I won’t get to be as active as I once was. 
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    • Posted

      I would take as good a photo(s) as you can of the redness and of the colour changes in your Raynuaud's and take them to your GP who may/should refer you to a rheumatologist. The throbbing of erythromelagia for me is like toothache in my hands. The wrong way of experiencing heat took a few years to arrive.

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  • Posted

    Suzanne I feel for u I’ve had raynaulds for over 20 years always thought it was from when my fingers got frostbite but that is not the case The cold and if I get excited brings it on and now it takes over a half hour to get feeling in my fingers in the early stages my fingers were just turning white now they go from white to red then purple to black which freaks me out cause I feel like I can be a candidate for having my fingers amputated if I can’t revive them in time Doctors today are not what drs use to be the majority of them just pass the boards by the hair on their chinny chin chin They cannot make a decision on their own without going on the internet and reading about what they think u might have My 24 year old daughter was in hospital for swollen lymph nodes in her groin and dr did biopsy  before he even got results he said the antibiotics we gave u in IV should have shrunk the lymph nodes and since it didn’t u must have lymph node cancer just a thing to tell a 24 year old kid Anyway got the results from lab and lab supervisor said he never ever seen this before so it must be cancer soo anyway they sent biopsy to Mayo Clinic and they said it was an infection and needed correct antibiotic to get rid of infection I don’t trust any doctors anymore and I sure would like to sue hospital and doctors for scarring the s**t out of my daughter and making her feel worse than what she was already sorry for breaking your ears  but I just went off on a tangent
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  • Posted

    I have the same issue when I work out. My lower arms and hands turn red and are very hot.  My knees, lower legs and feet turn red as well. Because of this, I no longer work out. It has caused humiliation and has caused me to become depressed. I was diagnosed years ago with my only symptoms being extremely cold toes that turn a little red. Eight years later, both my feet are painfully cold  and purple. When they warm up or it’s hot out they are painful swollen and bright red. Last year I noticed my arms and hands were only effected when I worked out. They would turn bright red and felt a burning sensation. Now my hands are always red.  I have no idea what’s next to come. I have an appointment with a cardiologist in March of this year. I am going to speak of all of my symptoms and progression with this disease. I will keep you updated on what the doctor tells me. I completely sympathize with you and do I for the both of us that this disease can get under control. So thankful I had found this site. 
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    • Posted

      Thanks for responding. It’s getting worse with temperature changes and my activity level. I have raynauds in my feet and hands but the heat and shooting pain in my hands/arms. We can’t live our lives doing nothing. No cleaning, no working out and it’s even affecting me playing with my kids outside in warmer weather. I just didn’t know what kind of specialist to see. A neurologist, a cardiologist...? 
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