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I was diagnosed with an aneurysm of my ascending aorta almost three months ago now and I feel like nothing is happening very quickly with regards to my treatment.
It was an incidental finding on a CT-PA after I had been having some chest pains and episodes of shortness of breath and was measured at 51mm on that scan. I was referred to the cardiothoracic dept of a local hospital who (after losing the first referral) referred me back to a cardiologist at the hospital where I work. Since then he has done a 24 hour BP monitor, a trans-thoracic echo cardiogram, and two weeks ago a CT angiogram. This last CT measured the aneurysm at 52mm, and confirmed a functionally bicuspid aortic valve.
While I was having that scan the cardiologist told me that "if your valve is working ok even though it is bicuspid we like to string you along for as long as we can before doing surgery to replace it" which has left me rather confused and disheartened. When I was first diagnosed I was given the impression that I would have surgery to repair the aneurysm quite soon but now I don't know what to think.
After googling around the internet somewhat it appears that the "normal" rate of growth for a thoracic aneurysm is 1mm per year but it looks like mine has grown that much in just over two months! I'm worried that if the cardiologist decides on a "watch and wait" approach my aneurysm will burst before my next scan. I'm only 45 years old and was planning to start a family with my fiancé this year (we're getting married next June) but now I don't know where I am at all. I daren't even think about trying for a baby in case the increased heart rate causes my aneurysm to rupture or grow faster!
When I was first diagnosed, although I was shocked I at least thought that by the time of our wedding the repair would be done and I'd be fully (as much as possible) recovered. Now I don't even know if the surgery will have been done never mind any recovery. What's making it worse is that the consultant hasn't returned my calls or replied to an email I sent asking if surgery will be done this year, and I work for the same Trust / Hospital!
I've seriously thought about telling my fiancé to find someone else. She's 15 years younger than me and wants a family, the last thing she needs or deserves is to be married to someone with my health problems. I know she'd refuse of course but I just feel so awful for putting her through all of this, she deserves so much better.
Sorry, I've ranted on far too much. I only wanted to ask whether anyone knows if surgery is appropriate at 52mm or not.
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