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  3. Polymyalgia Rheumatica and GCA

When is too much, tooo much( physically)

Posted , 9 users are following.

julia85224
julia85224

Hi all,

Apologies for the bizarre

heading.

Diagnosed pmr 2016, only reduced pred to 9mg then had to increase to 10.

I thought I was improving and able to do more. .

wrong.

I have also been diagnosed with copd and osteoporosis, So I thought walking

was with my young pup

would improve mobility.

I walk a mile a day, Thursday and Friday last week I walked a little further and

felt fine until Saturday,

Could hardly move, dreadful pain and feeling of total despair.

I have been in and out of

bed ever since.

My question is, why don't I get any warning that I am doing too much, I have increased pred by 1 mg today, shall I go back to 10.

There are so many of you worse than me, but today I feel at my wits end, I

wonder if the mental

havoc this illness causes is sometimes as bad as the

physical pain.

Hate to moan, any advise would be much

appreciated.

I hope you are all as well

as you can be.

Julia

1 like, 29 replies

29 Replies

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  • kathy67492
    kathy67492 julia85224

    Posted

    Overdoing simple activities has been a common thread for me during the past 3-1/2 years!! I keep a diary of activities and make a note of how Imfeel (on my Ipad). I am always surprised to review the info and find that I was not in fact "tempering" my activity, but tend to go full speed ahead until I have pain again! It used to take me a week or two to recover...plus 1m or 1m to help. Now that I am on the Actemra I can recover in a day or so with no increase in pred. The problem is that, for me, there is no indication of being worn out....like running your car without a gas gauge, you have filled up, go on a road trip, then.....all of a sudden, nothing!!

    • Michdonn
      Michdonn kathy67492

      Posted

      Hi kathy67492, last year I did not keep log, so I have no idea, but since starting my activity after my flare I log my activity, my dosage and how I feel each day. I wish I had done the same last year. I guess I would advise someone to keep a log starting on this journey. To have a positive attitude and smile. ☺
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