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When negative results are not such a good thing

Posted , 4 users are following.

Gaelic_Hare
Gaelic_Hare

I've been diagnosed with psoriatic arthritis for around 15 years. I still go through health checks and have regualr flare ups although the test and checks always come back negative for inflamation. Does anyone else have this problem as these results often make me feel a fraud?

1 like, 6 replies

6 Replies

  • lucynewas
    lucynewas Gaelic_Hare

    Posted

    Please do not feel like a fraud.  There is a condition known as sero-negative arthropathy.  In fact, the arthritis research council (ARUK) are campaigning to have the rhuematoid and inflammatory factors removed from diagnostic criteria.  So many people are left undiagnosed and / or untreated because of this.  Join the campaign to raise awareness among GPs and rheumatologists.
    • Gaelic_Hare
      Gaelic_Hare lucynewas

      Posted

      Thanks for your reply. It does help to know it's not all in my head. I'm lucky, I do have my treatments and regular consultancy meetings but when all your test come back negative you do start to doubt yourself. I will look up sero-negative arthropathy and hopefully feel less doubting and more accepting of these results. Thanks again.
  • Shropshire_Lass
    Shropshire_Lass Gaelic_Hare

    Posted

    I am exactly the same as you- the reply is very reassuring.
    • Gaelic_Hare
      Gaelic_Hare Shropshire_Lass

      Posted

      It would be a great help if the people testing also reassured you the result may be negative and this could be expected rather than leaving you with the feeling it's all in your head.
  • shooter01
    shooter01 Gaelic_Hare

    Posted

    Snap yes the same but not for as long nails just a bit pitted and look like some one as scraped them with a comb from nail bed to tip
  • emma_97735
    emma_97735 Gaelic_Hare

    Posted

    My inflammation levels always come back normal or near normal yet I have significant pain. Totally confused by this, my rhuemy says the back pain must be my discs and not my joints but Physio says it's not my discs because of the areas my pain increases when pressure is applied. This disease just drives me nuts.
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