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When pacing is not working

Posted , 16 users are following.

julia85224
julia85224

Hi,

I was diagnosed with pmr in May and reducing steroids, down to 10 mg.

I have had amazing support and information from many of you, as I am in denial most of the time and still think I can be super woman.

I have however tried very hard to pace what I do, so Sunday, and Monday did very little in the way of tasks, as I wanted to finish floor boards on Tuesday.

Old property gaps in floor boards, so armed with filler I agreed with myself I would only do 6, this took a couple of hours all ok.

This morning felt like I had been hit by a truck, arm, legs, hands hurt, so tearful spent most of the day in bed.

Was it too many boards or to few days resting before hand.

This I know is trivial considering what others on this forum are going through, just feel so sad, I have wasted a beautiful sunny day in and out of bed.

I so hope this gets better.

Hope you are all well.

Julia

0 likes, 107 replies

107 Replies

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  • karenjaninaz
    karenjaninaz julia85224

    Posted

    Does anybody take B12? Because B12 needs an acid stomach to be absorbed from food abdI take famotidine for stomach protection. I was concerned about getting enough B12. I started the sublingual form with my doctors knowledge.. I think it helps my energy because I am pretty able to do my basic stuff without crashing .

    I was diagnosed Dec 1, 2015 and I Annie in 11.5 snail taper program. I am 74.

    Karen from NJ US retired anesthetist

    • karenjaninaz
      karenjaninaz

      Posted

      I waned to write I am on 11.5 mg pred slow taper .
    • EileenH
      EileenH Anhaga

      Posted

      So do I! Never thought of it when I wrote about it originally!
  • dea13
    dea13 julia85224

    Posted

    Hi, I am sorry you are feeling the pain. I did a simlar thing, felt good and decided to go out, took me twice as long just to get dressed, once out walk to chemist, then did just 20 mins in Coles shopping, back to chemist and home. My legs felt weak and back pain, but I thought, wow I did it. smile  next morning I woke in horrible pain around 4am, and was wiped out for 3 days. So I guess it's getting to kno our body, and what we can do at the start > I'm on 40mg Pred at the moment. So now, I am just going to take it all slow :

    I hope you feel better.   Cheers Dea

  • catherine34621
    catherine34621 julia85224

    Posted

    Hi,I too have the same attitude, I have pmr.&gca. and can't seem to get my thick scull round the fact that I can't do what I used to. I cleaned my kitchen this morning, cause I felt good, rested, then after lunch I looked at my floor and I knew it was too much to tackle, but went ahead anyway. My husband has been helping me out and I thought I would do it myself! Needless to say I am now laid up, and wondering if I am quite sane. You are not alone!

    • Anhaga
      Anhaga catherine34621

      Posted

      Years ago there was a comic strip (Doonesbury) with two small children sitting in a sandbox.  The little boy was telling the little girl how he was going to get married when he grew up and listing all the things his wife would do.  The little girl said she wanted a wife too....

       

    • julia85224
      julia85224 catherine34621

      Posted

      Hi,

      Thanks for you're reply, you may get this message twice, I was disturbed by my cat bringing me a butterfly (oh dear).

      I make a list if things to do and ticking them off is a sign of a productive day, however this wee the job listings has no ticks and I keep changing the day, So all the jobs that were on Wednesday now are Thursday's.list.

      So frustrating, must try harder to get used to it.

      Hope you are well

    • Anhaga
      Anhaga julia85224

      Posted

      Julia, I find if I get ONE thing done in a day, that's good.  There are of course a bunch of things that get done every day.  But the tasks which might once have been done all at once on a given day now may take a week.  Like the annual cleaning out of the kitchen cupboards which is becoming rather imperative in my house as I speak!  I think I'll aim to get that accomplished by the end of August as after all one doesn't want to be doing the same dull task every day.  lol

    • julia85224
      julia85224 Anhaga

      Posted

      Bless,

      That true,

      and my cupboards are a disgrace, mainly because when have a burst of energy, now and then, if it is sunny I am I in the garden.

      Achievable goals is what I used to say to my daughter's, need to say it to me.

    • faye______00403
      faye______00403 julia85224

      Posted

      I know all the reasons I shouldn't do too much but get such a feeling

      of accomplishment that I don't have much anymore.   I miss that.

      Sometimes I go to the grocery store alone instead of having my

      husband take me....I use a walker due to lower back problems....

      and feel good about myself when I can make it without his help..

      I don't like feeling like I am on the slippery slope.......

    • Anhaga
      Anhaga faye______00403

      Posted

      Do you think we would all feel so much better about ourselves if society in general loved and respected its elders?  
    • FlipDover_Aust
      FlipDover_Aust Anhaga

      Posted

      I've 'decided' that I'm moving in with one of my daughters if I end up alone, whether they like it or not! lol

    • dea13
      dea13 FlipDover_Aust

      Posted

      I told mine the same  lol  I live alone now in a nice resort complex, they have 24/7 desk managers. It's a one bedroom unit only which suits me fine now, except from the carpark to my unit door 16 steps, but I don't go out a lot at the moment. And have Coles delivery to my kitchen bench.

      My daughter lives just 15 minutes away, but works... After 3 months of  PMR AND GCA and now on 40mg a day for 5 weeks  I don't really have the energy to do much anyway, getting blood done next week...  But life could be worse : Count my Karma

    • FlipDover_Aust
      FlipDover_Aust dea13

      Posted

      yeah, just try and relax about it all and realise that you will get better one day, but it's not likely to be tomorrow - so there's no point stressing about it.

      When you've worked out how to do that, let me know!

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