Posted , 5 users are following.
Hi everyone,
i was just wondering at what age you were diagnosed with coeliac disease? i seem to developed a wheat allergy / intolerance which is badly effecting my voice!
it just seems weird that i have had no issues all my life and now all of a sudden at 50 its effecting me?!
thank you
0 likes, 8 replies
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kathya_68748 Ladyward
Posted
hi! i was just diagnosed with Celiac this year at age 44
However ive had issues my whole life
i am only 4'10. think it stunted my growth!
susan878 Ladyward
Posted
Hi
i was diagnosed when i was 58 after having a lifetime of being anemic and under weight please have the blood test and an endoscopy. Your never too old to be diagnosed.***
sam18386 Ladyward
Posted
hi ladyward, , i was diagnosed just 6 months back. i'm 46.
susan878 Ladyward
Posted
i couldn't understand why it took so long to be diagnosed but apparently its quite normal to be diagnosed later in life. Most doctors put it down to IBS which my sister has. I had my sons and sister have the blood test but luckily they are all clear. Have your family tested and dont let the doctors just dismiss it.
Ladyward susan878
Posted
Well I have just done a home test, which came back negative. I know i am supposed to eat gluten for 6 weeks before the test, but i cant bear to feel rubbish and have no voice again for that long, so only eat gluten for a week 😦
I guess at the end of day, do i need to have it confirmed?
Basically - About 5 months ago my voice started to go very very croaky, at the same time a was struggling to loose weight and very tired. My voice just worse and in the end it was virtually non existent . To cut a LONG story short, after blood tests, camera down my throat it turns out a have an underactive Thyroid and very high antibodies. Consultant said my vocal cords have been damaged and he out it down to my thyriod and the antibodies casuing it to swell slighlty. He said, once im medicated it will get better, I have been on medication now for about 5 months, they have increased my levothyroine, but my voice and the strangling feeling is still there.
So about 4 weeks ago, i decided to go gluten free, within 2 days my voice returned to normal 😃 last week i went out for lunch, chose what i thought was gluten free and within 5 mins my throat felt funny and my voice completely went! (Didn't realise cous cous was wheat - whoops) This has happened one more time since then when i've had gluten.
So, its surely got to be the gluten that either my body doesnt like or its fueling the antibodies and making them attack??
Any thoughts x
sam18386 Ladyward
Posted
hi ladyward, i have been tested before and you must show yourself at your worse, eat gluten to confirm either way whether you are coeliac or not, good luck....
helen73763 Ladyward
Posted
Go back on the gluten, and ask your doctor for a blood test. If it comes back positive you will be sent for the biopsy to confirm it. Don't waste time with the home test, as they will still want to do theirs!
sam18386 Ladyward
Posted
i was diagnosed after years of being told this was ibs, i was aged 45. it felt like an eternity.