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Where are YOU?

Posted , 11 users are following.

Cajun9267
Cajun9267

Can we please, if you don't mind, post your location? State and city, State of treatment??

I'm in Louisiana, 2 surgeries in New Orleans, LA at UMC and getting MRI and seeing Neuro Surgeon at West Jefferson Medical Center tomorrow to discuss further options....

1 like, 17 replies

17 Replies

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  • rsw
    rsw Cajun9267

    Posted

    I'm from Vancouver, BC.  What were your two surgeries? I had one failed MVD, done here in Vancouver and not yet ready to entertain another procedure myself but would be interested to know what your surgeries and other options would be. 

    • Cajun9267
      Cajun9267 rsw

      Posted

      Rsw, my pain is a little different... I had a dentist drill a hole in the bottom of my right molar during a routine root canal. When he inserted the (caustic) sealant it killed the Inferior Alveolar nerve. I had a 7 hour surgery to replace a 2 1/2 inch section with a cadaver nerve... after that didn't work i had another surgery to clip the nerve but I am still in excruciating pain. I don't know what's next but I just want the pain to go away....

  • wavedancer
    wavedancer Cajun9267

    Posted

    I'm in the UK near Liverpool. I had MVD surgery February 2017. It was a success. No more TN pain!

  • dona40912
    dona40912 Cajun9267

    Posted

    I am in Norway. Top Norwegian neurosurgeon performed MVD operation, but it failed. I have atypical trigeminal neuralgia/ neuropathy. He found the cause and fixed it, but I am still in pain. 
    • karen15939
      karen15939 dona40912

      Posted

      Dona - so sorry to hear this! My MVD seems to have been a success so far - had it in May this year. There are some really great TN forums on Facebook. It always helps to have someone to vent to who knows what you are going through.
  • kathy75678
    kathy75678 Cajun9267

    Posted

    I live in a small town in Illinois. Bartonville, Illinois 61607
  • Cooking
    Cooking Cajun9267

    Posted

    Plano, TX. MVD 2 years ago at UT Southwestern.  Gamma Knife in a couple of weeks
    • Cajun9267
      Cajun9267 Cooking

      Posted

      I saw Dr. Zuniga there.... i was referred to him to have a cadaver nerve implant in my face. I decided on another Dr. from LSU in New Orleans. He was very nice and thorough.
  • esther48415
    esther48415 Cajun9267

    Posted

    I'm in Massachusetts and we went to the Massachusetts General Hospital in Boston. 

  • john02420
    john02420 Cajun9267

    Posted

    I live in Pineville Louisiana my self. I am not sure what I have.  Mainly teeth problems with all teeth sensitive to touch.  Dentist can't see anything wrong. Trying a neurologist.  If anyone is having trouble with their teeth please reply.  Thanks

    • kathy75678
      kathy75678 john02420

      Posted

      Hi John, My teeth all on the left side of my facehurt all the time. My TN was on the left side. After my MVD surgery my face pain went away but my teeth always hurt and eating is uncomfortable. I went to the dentist and I have one tooth that needs dental work but I am afraid to get any work done. I am always afraid the pain will come back. My pain started after a dentist visit in 2011.
    • karen15939
      karen15939 kathy75678

      Posted

      My pain started after a lot of dental work,too, but I was told there was no connection.  Dental work was on the left and TN on the right...some things just don't make sense!

    • karen15939
      karen15939 john02420

      Posted

      Hi John, my TN pain started after significant dental work. I was told there is no connection as the dental work was on the left and TN on the right but...??? It was either a weird coincidence or they were connected some way. MVD surgery in May helped me - no more pain just numbness and tingling now.
  • karen15939
    karen15939 Cajun9267

    Posted

    I live just outside of Buffalo, New York. TN survivor for >7 yrs and finally had MVD last May.

    • sandy1968
      sandy1968 karen15939

      Posted

      Hi, I was wondering how your MVD surgery went. I had mine 1 month ago and am starting to feel TN again just doesn't hurt as bad. How are you?confused

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