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WHERE ARE YOU ALL. PLEASE RESPOND.

Posted , 2 users are following.

Guest
Guest

I cannot understand why you are not posting. I feel so isolated. Are you getting information or help from another site. Please do not leave me out in the cold. Where can i make contact with other lichen planus sufferers.

Why is it that the people with lichen sclerosus keep posting and keep each other informed and you have grown silent. Have you all given up all hope.

0 likes, 4 replies

4 Replies

  • ellejelly
    ellejelly

    Posted

    hi just read your post,i know yours was in feb,i was diag with ls 2 months ago,how are you doin now x
  • Guest
    Guest

    Posted

    Hallo Ellejelle!

    Sorry to hear of youe doiagnosis of LS. Did you have a biopsy

    Do you have LP also?

    I had biopsies but unfortunately I got a negative result. This means that I do not know if I have LS or LP now but I have symptoms. So I believe it was a 'false negative. Hope you are well!!!!!!!

  • ellejelly
    ellejelly

    Posted

    hi,they thought it was lp bot no i have ls,its a horrible thing is,nt it but if you stick to a routine it can be controlled,i hope you are ok,keep intouch love pam xx smile
  • ellejelly
    ellejelly

    Posted

    sorry forgot to mention yes i had multiple biopsys :roll:
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