Where do i go from here

Posted , 3 users are following.

I went to see my consultant on Thursday and got the results of my MRI. After seeing my GP in January and hearing that surgery was the likely option I have been saying I didnt want to go down that road, on Thursday I was told that the damage to my vertebrae C4 to C7 was such that surgery wasnt an option as it would be too risky to try. Suddenly I wanted the option for surgery to be there! I was also told that my entire spine has arthritis. I have been referred to the pain clinic again, the wait for that is 18 weeks, until then its medication and I have to keep that to a minimum to enable me to do my job. I felt at an all time low on Thursday evening and yesterday though I do feel Im picking myself up again - I am usually pretty positive about things. I guess today is the best I'm going to feel so I should enjoy it!Thanks everyone, somehow you just been there is a support smile smile smile

0 likes, 6 replies

6 Replies

  • Posted

    i am so sorry to hear what you have been through, it brought a tear to my eye.it is hard to hear that there is nothing to be done about how you are, i went through it 13 yrs ago and i still hope that there is something i can do. i saw my neurologist and he suggested an op a laminectomy i think, it is a bit hazy after all this time, so i get referred back to the local health authority and they then send me an appointment to see a doctor no explanation who it was. i turn up at my appointment and during my consultation with a consultant from st james' in leeds, he bluntly told me that the op could be dangerous for me, and that i need to find an alternative. i was then sent back to my gp with no help at hand. i have had years of painkillers and visits to my gp all to no avail. SORRY this is really of no help to you but it brought memories flooding back and i had to sympathise. but i wish you good luck with everything you are going through and i hope it turns out better for you than it did me.make the most of the good days and rest on the bad.
  • Posted

    Hi

    I know how you feel :cry: I use a strong tens machine without it my pain would be so bad my life wouldnt be worth carrying on with...its called an EMN pain relief i was told about it from the hospital. you can hire them to see if it will work for you as we are all different...it might be worth a try it takes about a month before you start to feel some relief...it doesnt take all the pain away but just a bit helps!!!!

    good luck keep smiling smile shell19

  • Posted

    Thank you for your support, much as I wish no one had to experience this it is only those that do that fully understand. Im sorry about stirring up bad memories Chris, those feelings of hopelessness remain with us, dont they.

    Thanks Shell for the advise about the super tens machine, have thought about retrying one, first time, many years ago caused me to go in an even deeper spasm and physio stopped it - not sure if the machines are any different nowadays.

    After an emotional weekend, I'm preparing for work, I do enjoy my job so that's a great help - not sure how they put up with me though!

    Gentle hugs to everyone! Thanks again smile smile smile Jojay

  • Posted

    dont worry i dont get that upset that easy, it's strange how things wrote on here dredge memories, i suffer with underactive thyroid which affects my memory as well as umpteen other things. so it was important that you made me remember . the members on this site are the best bar none, if you need support here it is. i hope you get the support you need and good luck with your pain relief.
  • Posted

    hello jojay, sorry to hear about your problems, i know from personal experience that it hurts an awful lot, where abouts are you based? it may be worth seeing a different consultant in a different hspital, just to get a second opinion on the surgery option, while i have been less than pleased with the result of my second cervical disc replacement, the first one went superbly, xxxxxxxxx at the royal berkshire hospital in reading, hes a bit of a pioneer, might be worth a try, hope this helps :D

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  • Posted

    Thank you for your thoughts smile From my understanding of what my consultant told me I take it that as 4 vertebrae are herniated it's not an option to do just 1 or 2 and that to fuse all 4 at once would be too risky. Not sure if I fully understand what he said and I am wondering about others experiences. I will go and see my GP when he has report through from consultant - with hindsight I should have requested a copy! GP I saw in January was helpful and I felt I was having a 2 way conversation with him - I do feel ,very much so, that all the stepping stones to reach this point have been discounted as nothing to do with my neck and have been treated as individual symptons - as I say hindsight is a wonderful thing smile

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