Where Does One Turn?

Posted , 3 users are following.

I have Spondylolisthesis. Never free of pain.

Pain began in 1991, after a fall down stairs. Misdiagnosed as result of fall. Six years later, diagniosed as arthritis. Seven years taking anti-inflammatory drugs with no relief from pain. Finally sent for further diagnostics......Showed spondylolisthesis. Offered - well, no, TOLD that only hope of relief would be to undergo spinal fusion surgery. Refused that option. Too many risks of complications. 

I'm in pain constantly. Up to the highest level of analgaesia my GP can prescribe. Doesn't help much. In pain constantly and limited mobility is result. 

My son died just over two years ago.  I'm not able to get to his grave on my own - because it's too far away for me to walk. 

Now I'm told that I have an occluded artery in my heart. Not treatable. It might kill me one day. I'll never know when it might happen.

Life is uncertain. Nothing goes as one expects it to progress. My life has become nought but pain. I can't change what has happend. I have no alternative but live best I can with the hand I've been dealt.


0 likes, 4 replies

Report / Delete

4 Replies

  • Posted

    My gosh that's awful!! If I could give you a massive hug I would! I've just been diagnosed with Spondylolisthesis (after 10 months of Dr's telling me I've just pulled a muscle because im 23) but it isn't bad enough to have surgery yet. Dr's are useless, haven't got a clue what to do with me and the meds I'm on do nothing.

    Something that used to help me with my back to relieve the pain is either a hot water bottle or a wheat bag placed on painful area. Really really helps!! I know it may not be much help, but I'm here to talk if you want to talk smile xxxx

    Report / Delete Reply
  • Posted

    Maggi, I have spondylolisthesis at lumber 4/5.  Symptoms started many years ago, the first one being that suddenly I found turning over in bed difficult.  I then had episodes where it would just go into a complete spasm and I'd feel as though the top half of my body had come detached from the bottom.  One orthopaedic specialist described my injury as very much like those seen in people who fall from a horse.  I'd never been on a horse in my life but a few months previously I had slipped on a shiny floor and landed heavily on my btm.   This particular specialist did not agree with others' advice to have the spine fused and a disc removed.  He said it involved major surgery, and instead advised me to get in the water and swim on my back only.  When I told him I can't swim he told me to get in the water with a float!  I joined an aquarobics class but took things easily rather than trying to compete with others.  At the same time he had me measured and fitted with a made-to-measure corset.  As I've got older, I seem to be managing it well, and if I do have a problem, I immediately don a support panti girdle (the corset no longer fits!) and find that within 2 or 3 days the pain is gone.  I always make a point of sitting only in supportive chairs with a firm seat and back, and sleep on supportive beds.  I also have a walk every day for about half an hour and don't sit for too long.  All these things help, and perhaps might help you too.  I prefer to try all these remedies than take pain medication - not advisable for me as I have only one kidney and chronic kidney disease.
    Report / Delete Reply
    • Posted

      Thanks for suggestions. Sadly, I'm at the end as far as relief is concerned.  I've tried so many alternative remedies for pain relief that I've lost count and track of them all. Hotwater bottles, wheat packs, herbal potions/pills......Nothing has any effect. Back to drugs, then. Co-Codamol, Gabapentin. I'm dependant on them, but, at least they take the edge off the never-ending pain.
      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up