Where does your pain radiate to?

hello,

i can relate to most peoples expereinces on here as ive had bornholmes for about 2 years now and i get cronic pain esp when im tired or stressed and it takes at least a week of mainly sleeping to get right again but then it flairs up again within weeks,i get really bad pain from my shoulders into my neck,in my chest and people really dont believe you,its a frustrating condition and i cant get on with my life,,its getting me down now to say the least,it always seems worse in the winter months too or when the weather changes after settled periods.

the doctor cant help me all he said to do is go home go to bed and take co codomol,which hardly touches the pain.

id really like to hear from other people with bornholmes as im getting fed up and dont know what to do anymore :? :cry: .

wild1

Hey, really glad I read your post as my experience is really similar.

I'm 22, female and physically very fit. 2 yrs ago I developed Tietzes and have had flare ups ever since, it has never really gone away but seems to come in waves. I've been to the docs 6 or so times and I just can't seem to accept that it's not my heart causing the pain although they keep reassuring me its not. The pain is usually on my left side and always radiates down my arm (sometimes its so bad I have to stop and grip my arm) and more recently in my neck, both front and back. Diclofenec and pain killers don't work, one thing is for sure anxiety makes it worse. I have been trying to understand the condition so I hope this info helps some people.. A doctor has explained to me that the reason it feels so simliar to a heart attack is because the pain felt in the arm and neck is identical to that felt when experiencing a heart attack as the same root nerve in the chest is being irritated with a heart problem/tietzes. Therefore the reason anxiety causes the condition to worsen is due to adrenaline being released and the chest tightening. So I would say as a bit of advice try not to focus on it and take it easy.. although I can't seem to do that myself.

I have not yet found any relief from the condition so if anyone can help please let me know.

Hi

Im the same had the all the same cardio work up about 2 years ago, even had an angiogram, said they couldnt find anything!! but yeah the pains awful, and you think every day is gonna be your last.

Gday people,

So sorry to hear we all have to suffer so much with so little help and advice.

I have had this for twenty years and I find the best thing so far is deep tissue massage.

I bloody hurts like hell but I found after one treatment twice a month it has had a very positive effect. It took a few months to really see the benifits but it works. Accupuncture works too.

I still get the pain (probably will do for life) but the attacks are no where near as severe or last as long.

Sadly I have just moved town and have to find a new osteopath.

Try to avoid stress as this is a major trigger as is booze. A change in diet is worth a try.

I hope this helps

Cheers

Aussie Matt

[quote:89e9726a76=\"molly22\"]Hey, really glad I read your post as my experience is really similar.

I'm 22, female and physically very fit. 2 yrs ago I developed Tietzes and have had flare ups ever since, it has never really gone away but seems to come in waves. I've been to the docs 6 or so times and I just can't seem to accept that it's not my heart causing the pain although they keep reassuring me its not. The pain is usually on my left side and always radiates down my arm (sometimes its so bad I have to stop and grip my arm) and more recently in my neck, both front and back. Diclofenec and pain killers don't work, one thing is for sure anxiety makes it worse. I have been trying to understand the condition so I hope this info helps some people.. A doctor has explained to me that the reason it feels so simliar to a heart attack is because the pain felt in the arm and neck is identical to that felt when experiencing a heart attack as the same root nerve in the chest is being irritated with a heart problem/tietzes. Therefore the reason anxiety causes the condition to worsen is due to adrenaline being released and the chest tightening. So I would say as a bit of advice try not to focus on it and take it easy.. although I can't seem to do that myself.

I have not yet found any relief from the condition so if anyone can help please let me know.[/quote:89e9726a76]

check out fibromyalgia

I recently had my diagnosis of Tietze syndrome approximately a month and a half ago. I am a 23 y/o female who exercises at least 5 days a week- pretty healthy. My pain began in the center of my chest and radiated up through my neck and into my jaw. The pain was intense and anxiety resulted. After every test under the sun-nothing was found other than the abnormal inflammatory blood test which confirmed Tietze Syndrome. My advice for alleviating the symptoms: Use an ice pack on your chest at regular intervals and eat foods known for having an anti-inflammatory effect (nuts, soy, berries, low fat protein). I can say that my symptoms went away after less than a week. I do have flare ups, but NSAIDs and an improved diet allow me to continue my daily activities. I hope this helps someone!

ive had it for 6years now ive put in a bad wk now still in so much pain dont know how im gopin to get through xmas if im still like this any advice welcome please

Hello,

I was just browsing through and looking at pages related to Costo and was shocked to read yours. Your symptoms were so similar to mine it was unreal. I've also been through what you've been through. Trips to the ER, up at night - afraid I wouldn't wake up, etc. I know exactly how you feel!

Here's the strange thing about me...I hate to take meds, so my flare ups can really get bad sometimes. Right now I'm between flare ups (hope I never have another one). But I have had them so bad that I went to a thorasic surgeon to inquire about exploratory surgery - but elected not to. I'm a 18 year old white male and have had this for 10 years! Can you believe it. Hope it gets better for you.

Good Luck!

My daughter is 19 & was diagnosed with Tietze's a year ago. She had a lot of GI issues in the beginning so we thought it was pain from that. After being scoped several times everything came back normal. Then she was diagnosed with Tietze's. Nothing stopped her pain. . I'm sure you can realate  to visiting about 10 different doctors she was diagnosed with Ehlers-Danlos Syndrome III. All of her multiple symptoms added up. I just wanted to mention this incase anyone else isn't sure if they have Tietze's or something else. With Ehlers-Danlos Syndrome the pain is not correlated with radiological or blood findings. Same as Costo & Tietze's. If you ever had GI issues pain, are doubled jointed you may want to look it up. 

What med has your doc offered ? You can pain relief and anti imflamtories. 

I am under a pain clinic as I have Costo with spondythesis ( spinal damage ) and there is a n option of injections I beleieve