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  3. Lichen Sclerosus

White patches

Posted , 11 users are following.

suzanne21762
suzanne21762

i was diagnosed with LS about three years ago.  God it is a hateful disease.  I use Dermovate to keep the LS under control, my urethra is very tiny and there is a possibility it will have to be sorted in the future.  I have been using the Dermivate in this area and also over my clitoris which was slowly disappearing, my clitoris appears to have come back! But I have noticed my skin above my clitoris is white and also on my labia, but only on the outer parts, difficult to describe really but the centre of my 'girlie bits' is a healthy pink/red but round the edge is white. I thought initially that the Dermivate had caused the whiteness but I am wondering now if this is the LS and I should use the Dermovate on this area specifically? Probably a bit of a silly question but has anyone else experienced this? I may well go to doctors anyway to get this checked out. Thank you all, your support is invaluable and soooo appreciated. X

1 like, 18 replies

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  • suzanne21762
    suzanne21762

    Posted

    Hi Caroline, so sorry to hear you have this horrible disease. Luckily you have now been diagnosed AND you have found this forum, probably like the rest of us by accident rather than design. Finding others and hearing their thoughts and reading the discussions has helped me cope and also to feel that I was not alone.  The LS became less scary in my head, doesn't mean it went away just that I felt more able to cope. Best wishes Suzanne x [possibly a future 'peeing sprinkler ;(. ]
    • caroline16811
      caroline16811 suzanne21762

      Posted

      You're welcome Mary.

      Bless you Suzanne, you are so right on all counts. Especially the not suffering, and i use the word advisedly, on our own. I can feel the genuine care and concern in people's replies, it's a balm in itself. Sincerely hope you always pee straight ☺

      Am now going to look into eating a more anti inflammatory diet. I have recently cut out caffeine - my body MADE me give up wheat and glutton a while back , oh and sex of course ! 😢

      take care xx

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