1. Community
  2. Women's health
  3. Lichen Sclerosus

White patches: anyone got a theory?

Posted , 6 users are following.

Morrell1951
Morrell1951

Marey posed this question at the bottom of 70-odd responses, so I thought it deserved its own topic.

In psoriasis (my other problem) the scales are 'cheap cells' – the skin is regenerating seven times as fast as normal skin. They pile up so thick that they overheat the layer below, causing itching.

To me the white patch in LS looks like the waterlogged skin of a corpse in murder mystery shows. I joined one of the LS Facebook groups and looked at some of the archived photos members submitted. There was one poor soul who had multiple square feet of white skin and it was wrinkling like wet paper.

I have had the same white patch on one side of my perineum forever. I've had it go pink (normal) several times over this year I've been using Dermovate. When it's pink, it doesn't tear. The more white it is, the more likely to tear.

So, my theory is it's dead cells. Kind of like a blister, but on a much smaller scale, like one cell at a time, so it doesn't just peel off.

 

1 like, 25 replies

25 Replies

Prev
  • marey
    marey Morrell1951

    Posted

    Further to this and linking with sue's thread....cholesterol levels might be relevant markers too (if known).

    My mentor, who healed herself from LS had her before and after readings. I'll ask if she would share these. The one thing I don't want people to conclude is that the answer is to jump on the 'knocking down cholesterol' band wagon....that perspective is heavily flawed. Seriously dangerous. Up poo creek (and needs to stay there). A far more sophisticated approach is needed. So sharing this line of thinking is conditional....that no-one will start killing themselves slowly by taking statins. There's an effective way to deal with the negative effects of raised cholesterol and thats by helping this active and vital substance to achieve its objective by working with the body. Happy to address this further xx 

    • Morrell1951
      Morrell1951 marey

      Posted

      In over my science head now. I'm a dabbler in a couple of kinds of science – climate change and microbiology – but in the process of looking things up I discover how much more knowledgeable other interested people are than I. And I'm either unwilling or unable to absorb more. I can delve deep, but science isn't my area of serious capacity/interest.

      It's not that I'm handing over my care for lack of interest, though. This week I'm taking a next step in cutting down on sugar. I'm seeing a difference.

    • marey
      marey Morrell1951

      Posted

      really....thats great news!

      but may i add a little more info? or maybe i should keep schtum (how do you spell that?) ..../ silent until i'm healed?

    • Morrell1951
      Morrell1951 marey

      Posted

      Thanks Marey for treading lightly. I take instruction very poorly. It's a big leap for me to go to the next stage. All I'm doing is using unsweetened almond milk (bought by accident and liked) and putting local maple syrup in my coffee instead of white sugar. And I'm not even having the occasional butter tart. I think I'm getting close to deciding to completely cut out white bread, which I have for my husband and can't resist sometimes. Cutting out grains is not going to happen. I'm not suffering enough to be motivated. In fact I'm not suffering at all. I have no more bouts of blowtorch butt since I cut out the big sugar treats.
  • hanny32508
    hanny32508 Morrell1951

    Posted

    High Chlorestorol?  Not me.  Malfunctioning adrenal glands and therefore poor immune system - yes.  Has anyone here had their adrenal glands checked?  A while back there were a number of people who also had thyroid problems, and LS.  Adrenal and thyroid are linked. 
    • Morrell1951
      Morrell1951 hanny32508

      Posted

      When I went cold turkey off hydrocortisone creams for psoriasis and looked up withdrawal symptoms / rebound, my intermittent reaction seemed like Cushing's moon face. I ended up reading about adrenal fatigue, which jived with my decades of anger. At the same time my LS progressed to serious fusing.
    • marey
      marey hanny32508

      Posted

      I definitely think I should...did you approach your GP for a test?
    • Morrell1951
      Morrell1951 marey

      Posted

      It's confusing to me – poor immune system vs multiple auto-immune disorders. I certainly don't have a poor immune system, I'm super-healthy and pretty strong and fit. I sleep like a log and poop very nicely, thank you. I never get really upset (I mean screaming angry or sobbing for hours despondent as I once did. I don't feel one bit closer to understanding 'Why me' with LS. No, in fact, I do feel I inherited my mother's adrenal fatigue and then proceeded to build my own.
  • Chrisy
    Chrisy Morrell1951

    Posted

    I have just looked up adrenal fatigue on the web.  Interesting.

    I think the white cells are the skin being affected by Ls that has gone dry first, before it then softens and goes transparent and silvery, I know this happens more when the area is wet or not pristine.  When we moisturise the white skin it seems to revert to a pinker appearance, a bit like a burn healing that first goes pink before it scars, so it appears to go away.  That is why I think moisturising is the most important treatment as when the skin dries it cracks and splits causing the trauma we all know about.  I think the dermovate I use is what keeps the Ls at bay and prevents any over reaction/increase in symptoms, like it is used in other skin conditions like eczema.  I am trying to reduce the dermovate as I am concerned about over use but I don't feel I could ever stop using it as I fear the cancers may be caused when the skin is not treated and the constant damage is the trigger for it.  Just my thoughts!!!!

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.