1. Community
  2. Diabetes and hormone problems
  3. Thyroid and Parathyroid Disorders

Who knows parathyroid cancer ?

Posted , 2 users are following.

tana_33
tana_33

Hello

I ve been operated of parathyroid cancer in March 2015 in France. It seems very rare. I m looking for people with the same disease ? I am still in hypocalcemia after 8 months even with 3 g of calcium per day and vit D.

Have you ideas to go out ?

1 like, 3 replies

3 Replies

  • karen63023
    karen63023 tana_33

    Posted

    Hi there, I'm sorry to hear that you have hypocalcemia after your surgery. Did you have all 4 parathyroid glands removed? How are you feeling?

    ​I have had 3 parathyroid glands removed so far and need to have my last one removed as I have an adenoma on that one too which is damaging my bones gradually. I will in all probability have hypoparathyroidism following this.

    ​Do you have a good endocrinologist who is helping you to manage your symptoms and medication?

    ​Whereabouts are you in France? I will be in the Bergerac area from January.

    ​Best wishes.

  • tana_33
    tana_33

    Posted

    Hi I have had only 1 parathyroid removed but with an adenoma of 4 cm and a cancer. They say that the HPT was so high (around 970  norme 1 to 60)  that I can't live with a normal HPT now. My endocrinologist says thay it is not a problem to take 3 g of calcium I have to check, in 6 months, the blood calcium and if it's too high the cancer is back or ... I have taken too much calcium. WIth sentence like that I can be endocrinologist. My usual doctor is much more pleasant.

    I have also bone damages on the vertebral column  (brown tumor and lytiq lesions) but I have no effect. Normally after the operation the tumor must slowly disappear.

    Why have you had 3 parathyroids removed?

    I am near Bordeaux (one hour of Bergerac) If you want to meet you are welcome.

    When is your operation ?

    Do you speak french ?

    Best wishes

  • karen63023
    karen63023 tana_33

    Posted

    Hi Tana,

    ​Yes I will not be far from Bordeaux. I will PM you so we can chat more.

    ​Karen

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.