Who should co ordinate?
Posted , 7 users are following.
Unfortunately, I am under different consultants and surgeons due to conditions of my heart as well as GCA/PMR and they all seem to disagree with each other and I find the stress just exacerbates the pain and flares. Every appointment is a struggle! Blood tests from GP was told 'normal' then had to collect my CRP (raised to 17) from the hospital. Heart op booked for 5 weeks and then not because angiogram not done - the hospital lost the letter. Anyway the angiogram was done on Friday with 3 days warning for which i had to increase from 9mg up to 12mg as pain increased excessively, solely down to stress, I'm sure! All went well with clear arteries but had to be injected with valium twice - lovely at the time but not so good a day later. CRP down to 12. GP wants to talk to me tomorrow about raised CRP, I think and Rheumi wants me on methotrexate or leflonimide on 3 February! He doesn't consider the heart a problem despite the cardioversion in April and open heart surgery looming! I despair.
3 likes, 9 replies
lodgerUK_NE Whisper2003
Posted
This problem is caused by the change from PCT's to GP Commissioning. One Consultant just cannot pick up the phone and talk to another, as the GP is paying the bill.
gillian81509 lodgerUK_NE
Posted
urology put me on meds cardiotoxic to heart post cardioversion as I was on amoderine
Gujarat didn't liaise with cardio
General meds didn't liaise with anyone and so on
you can contact
powher free advocacy service to assist you with templates on correct letters and then pals can organise it all
invaluable service
Whisper2003 lodgerUK_NE
Posted
Whisper2003 gillian81509
Posted
EileenH Whisper2003
Posted
A very large part of the NHS failings at present are due to poor communication - I hope lodger's recommendation of PALS can help you sort it out.
Whisper2003 EileenH
Posted
teenyjeeny Whisper2003
Posted
Whisper2003 teenyjeeny
Posted
lodgerUK_NE Whisper2003
Posted
Type PALS into your serach engine. Then read it, orring one of the hospitals you are attending and ask to be put through to PALS.