Whole body muscle weakness/atrophy on right side

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My symptoms are below:

-Mid 2006- Felt right leg week when I am exercising. Felt right hand weak and fine tremor.

-Did all possible tests and MRI,EMG, everything normal in 2008.

-2006-2017 - I let it go and nothing was bothering.

-But meanwhile all the length I have observed that my right side of the body was little weak in terms of muscle strength and muscle mass.

-I could able to do all the things and can able to do even now.

-But now whole my right side has a little less mass, face, shoulders, trunk hip, glutes,thigh , leg and foot.

-Little that it is not yet innterfering in the daily activities.

-Concerned, I went to neurologist.

-EMG done and it is normal.

-Neuro ordered blood tests.

- midly elevated calcium, aldolase, liver enzymes, album and positive ANA with < 1:80.

-ANA is positive but titer is normal (< 1:80)

-Planning to meet the neuromuscular specialist next month.

-Connecting all dots together till now, I am just wondering what this condition might be?

Given that it is present from long time and I could function normally now with normal EMG, can ALS be ruled out?

Thought this could be polymyositis but I have the weakness and atrophy mosly on one side of the body.

Pleas let me know your thoughts

 

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  • Posted

    I have had a life full of stress. I do understand the sensation of feeling something decaying. I'm a single mother of 7 kids. I have 9 grand babies. I'm proud but it's been lots of work. Been through more than one divorce, have lived all over the US and a couple places in Mexico.

    I had a 90 minute MRI yesterday. That was to check my cervical, lumbar and brain. I had a normal brain MRI in May. I know what my back looks like. I'm really worried about this chance at it being myopathy but even more worried if it isn't. When I have an answer to those, I'll be sure to post. I wish you happy days until then.

    • Posted

      When did you quit drinking? They say it can cause muscle atrophy and may take four-five years to reverse after quitting. I used to be an all-star drinker; able to drink a fifth in a day and still be conscious as long as I didn't do it too quick. If I did drink a fifth within four or five hours I definitely would black out. The fifth in a day thing was only for a couple years. I mostly hovered around a pint & 1/2. I was a binge drinker though. It does major damage. It's funny because I used to be able to drink and still be a statue physically (I used to be blessed physically). Now I'm a rotting out corpse! Also, my spine is shifted because the left side of my body is abnormally weaker than my right. It's only natural the spine would shift after - causing a dynamic downfall in health just based off that.

    • Posted

      I quit drinking heavily in 2016. I've drank a little here and there but nothing major. My MRI's were all normal aside from back damage. There were some blood tests that my doctor ordered (did those yesterday) and I have a referral for a muscle biopsy.

      Meanwhile my life has crashed around me because some of my family fear I'm going crazy.

    • Posted

      I'm not sure if the health benefits negate if you drink even a small portion. What would you say your drinking schedule is? I'm an "all or nothing" type of person. I either don't do it; or, I do it too much. This was the case with that too (and will be also in the future if/when I return). What kind of blood tests are you getting? I've been having about two of them a year the past four years based off my complaints - all to no avail. They all come back fine according to the primary physician. A muscle biopsy is something I have yet to get. I did have the EMG, upper spine MRI, (2) brain MRI, colonoscopy, bone-density test, stress test/heart imaging, eye test and a few others I'm forgetting. Last night my left eye became a little blurry compared to my right. It was a unique experience as I've never had that since this began. It's back to normal today. I want to say that I feel my left eye has been a little worse than my right since this started happening (left side is my more affected side). I even feel like the pupil is slightly less in size than it used to be. The optometrist never mentioned it when I had my eye test less than a year ago. My vision isn't as good as it used to be either. I'm constantly bloated even if I had released waste. I can tell I'm not getting all of the waste out even with using Miralax and going two-three times a day (three times a day is rare). A little less hair on my left side compared to the right (on head and body), even though it used to be either the same amount or more than the right prior to this happening. Whatever this is affects more than just the muscles is what I'm getting at. I've been told two ideas that I haven't yet fully been examined for: tendons & possibly hormones. I had checked my hormone level of Cortisol and testosterone - both checked out normal (according to the physician; I say "according" because these doctors are lying scum). I'm sure there are other hormones I can get checked out as well. I take thyroid medication, do you have any auto immune diseases?

  • Edited

    Hello all, I have finally been given a diagnosis, Stiff Person Syndrome (SPS). It's classified as neuromuscular and they're thinking and testing out autoimmune as well. Hopefully this information will help someone out there looking for answers still.

  • Edited

    My primary physician keeps saying that he and others think I am delusional (a.k.a. body dysphoria). S**t is a joke and funny (in a counterproductive way) at the same time. This is how I know I'm done. It's always the same story - the person isn't believed, then when it becomes so obvious to others that they finally believe, the person is done at that point. He's a terrible physician, too bad I have been seeing him for the past 20 years and it's hard to switch based on history. It's just that lately I have had real problems (this) and he's of no use. Before I was fine and didn't know his lack of competency. When a doctor is so pathetic and egotistical that he blames the patient for his lack of diagnosis you know he's a fraud.

  • Edited

    Hi everyone. I'm still alive (lol)

    Just a brief update of my situation that began just after Christmas 2016. I was about 182lbs & minimal body fat & had no health complaints & didn't visit the doctor for no reason.

    •Unintended weight loss (7lbs) after eating 2016 Christmas/new year feasts.

    •Unintended weight loss despite eating a little more to try & prevent it.(another 7 lbs).

    •Sudden constipation, loss of urge, inability to push stool out.

    •Continued unintended weight loss despite increase in caloric intake.

    •Continued constipation & weight loss, despite eating like a horse to try & maintain size. (Dropped to 126lbs) doctor not concerned because i wasn't considered 'low' BMI for my age at the time, even though i had not been that weight since childhood.

    •Weakness/loss of muscle mass, strength & coordination. Foot drop, walking into objects, struggling to hold kettle etc.

    •Burning calves when ascending stairs (claudication)

    •Racing heart/tachycardia, worse after eating.

    •Left sided headaches.

    •Loss of endurance/fatigue problems.

    •Sexual/erection problems, pain.

    •Breathlessness.

    •Burning pain in upper abdomen at night.

    Depression/anxiety/suicidality.

    •Tight muscles on the weaker side(left).

    •Left ankle, knee, shoulder, trunk pain.

    •Lower neck pain mostly left sided, lower back pain, upper & mid back pain, hip/pelvic pain.

    •Fatigue/muscle strain, posture & exercise intolerance.

    •Myoclonic seizures & 1 tonic clonic seizure (May2022).

    •Double vision.

    •Insomnia/ reversal of sleep/wake cycle.

    •MRI revealed a hyperintensity on right side of PONS. Repeat MRI with contrast was normal.

    Meeting with neurologist was a waste of time. May as well not have had a meeting because he was not interested in all my problems leading up to the seizure, he was only interested in the seizure itself & he used the second MRI result to say that there was no cause found. I'm 31 I've been dismissed since 2016 I'm sick of it.

    I too am losing hope but I refuse to give up just yet. I've now lost my partner, we are breaking up, I am losing the house. My job is on the line because I am on the sick due to my struggle with breathlessness, fatigue, posture weakness & insomnia.

    I cant sleep at all in the nights. I believe this is due to the hopelessness of not being believed or helped. My dog died recently, he was dying from multiple myeloma & I was cleaning his infected paws when he went blind from the stress. I'm devastated & can't stop feeling guilty.

    I will be going to the practice manager to see if she can arrange for a doctor to take me seriously. One last attempt before I probably give up on doctors & diagnosis. I am struggling daily that is why I pursue doctors. I did not imagine my way to lose all that weight, muscle & strength.

    I did not imagine my way into having a huge seizure where I fell unconscious, bit my tongue & pi55ed myself.

    I don't want to play this game of medical ping pong forever so I think this is my last attempts before giving up on the medical system.

    I hope everyone is doing well. Hold onto hope that there is a better future ahead. This Christmas I will be forgetting about it all, getting drunk, crying a lot & spending time with family. What have I got to lose lol.

    Have a good Christmas & New Year everyone !

    Alex

    • Posted

      Your symptoms seem slightly different than mine. I don't really have pain or tightness. I noticed this happening to me first in late 2017 (December) or early 2018 (January). It propelled in March of 2019 when I woke up one day and my penis wasn't hard. It has always been erected after sleeping since I was eight or nine. No matter how often I used it prior. My face seemed to have a slight drop in skin around between the bottom of my jawline of my cheek/chin. I thought it may have been a stroke (who knows, maybe it is/was an aftereffect); but, I think now it was just the left side of my face losing muscle and it was the fat appearing that way (I have had a chubby face my whole life, it used to be a baby face and I looked young, now I no longer have such a remarkable trait). Either way, since then my penis has lost muscle (and maybe something else? affecting more so the left side [my most affected side]). Fast forward to the summer of 2019 - I went to lie down to sleep during the month of July and for about three weeks my left leg would start having tremors and there was nothing I could do about it. I thought it was because I was drinking too much alcohol and my body was finally rejecting it. I quit for six months around this time and my (possibly yours) condition worsened - as it has been since it began. Also during this time, I'd have strange sensations in affected areas (like mouth region, lip region, left hand etc.), where it would have a sensation I cannot describe with words. I think it meant it was deteriorating because afterward it was smaller in volume/size. The left side was a progressive state of shrinking. After six months of not drinking and exercising/getting stronger at an uphill battle as it was nothing like before when I exercised (I've always been physically superior to the average person) I went back to drinking. The very next morning after drinking, I noticed my entire right side had shrunk from bottom of feet to top of head. It is strange as my left side has been progressive and the right side did one big swoop of decay. Since I've been losing muscle and whatever else that has been affected by this withering condition. As you said: constipation is a big problem now, I am dependent on stool softeners even though I have a "proper" diet. Usually when someone lacks sleep or ages they gain bags under their eyes, I now have potholes that sink in and that is the story of my entire appearance. My genitals used to be large, now they are shrunken and depleted - all while being almost entirely inoperable now. I've typed this a few times in this massive thread; but, since you have summarized your condition I felt the need to do my own. And as with everyone else in this thread (beside Cassandra), I have had all the universal testing and they have came back normal (thus far). I have kind of given up on progressing or doing anything of "fun" anymore. Of course I have people who are in denial about my condition, those personal to me and the medical industry. The neurologist say I have a mental condition that is making me see something that isn't there. Well, I don't need eyes to know what is going on, it affects the entirety of my being. I don't know if they're saying this as a defense mechanism that they don't have a clue on what is going on - or, if they enjoy medically pimping me out with no results. I've lost my patience with these medical doctors and they think they'll get away scot-free with their negligence, they are wrong.

      Also, with the exercising thing you mentioned, it's always good to exercise; but, I tried that and my condition kept moving forward. That is why I gave up and stopped. Also, if It was an exercise thing my face/head wouldn't be affected as you don't lift weights/run with your face/head so why is that part of my body losing muscle? My right side has been affected too, it's just that it still feels "full" and "connected." It's far less affected than my left, I'll leave it at that. I can't believe I'm saying this, my left eye appears slightly smaller than my right, when naturally it should be slightly larger than my right. It's something I've noticed since this has been happening. The left part of people's bodies are usually seem as larger with more volume (including the left cheek area) compared to the right. I was normal before this started happening. I've lost more hair on my left side, and sadly it appears I have slightly less sensation on my left side compared to my right now. I'm doomed and I just drown myself in entertainment to get my mind away from these thoughts.

    • Edited

      Hi,

      As we discussed on previous comments in this thread, my symptoms were practically identical to yours, but have worsened in recent months, including the seizure & resulting double vision & insomnia. I have everything you describe, sunken in face, used to have a baby face now I've aged like a junkie. drooping lip, penis shrinkage.

      I had a few occasions before & after the seizure where I would get goosebumps/ tingling over the left side of my head/scalp & down my neck. I had a wet sensation over my entire body from the neck down, with the exclusion of the right side of my head, my right neck, and my right arm. Everything else felt like I was wet/under water.

      I didn't use to have much pain. But it seems my supporting muscle, spinal muscles have weakened & wasted to the point where I can feel my vertebrae grinding against eachother when i arch my back. My knee & ankle hurts to stand & walk on & my back hurts from compressing down on itself under my weight. I think the muscles that support the joints are no longer strong enough to do their job, so I am getting grinding cartilage, inflammation & pain. My left shoulder feels like it could dislocate & hurts to lift it in the air. I have a tendency to cross my legs all the time & to tuck my arm into my torso like a wing. I put this down to muscles wasting & becoming shorter & tighter.

      i have that thing Cassandra described where if i lift a leg up & rest my ankle on the knee/thigh, it is too tight to relax to a level position, and the knee stays elevated in the air. I think this is due to tight hip flexor muscles & tight quads, glutes & hamstrings.

      My left hand has recently developed an intention tremor, where it gets jittery when I try and focus to do something.

      For example to place something small in a specific place, or to do fine motor skills. I am under a lot of stress with the breakup etc so I'm hoping it's that. However all of my symptoms leading up to now make me think it's progression/further deterioration.

      My seizure points to the fact that it is brain related. Whether that's a disease of the brain itself or a condition of the body which directly affects the brain.

      My digestion is still bad, with a few episodes of upset stomach where it feels like what I've eaten is not leaving the stomach.

      I worry that my initial first ever symptom of weight loss & constipation, and sightly elevated bilirubin levels indicate an issue with digestion & absorption. I think i wasted away due to malabsorption. I think the primary root cause is down to this deficiency of nutrients. Looking up pancreatic cancer, it is thought to grow slowly over a period of many years, with vague symptoms, until it's large enough that it entirely blocks the bile ducts & you turn yellow.

      I urge you now to pursue a thoracic MRI scan to check the cross sections of your digestive organs, such as pancreas, liver, gallbladder, spleen, intestines, as well as the lungs & kidneys. Rule out a structural issue with your organs first & foremost. I paid for a CT Colonoscopy years ago but that did not reveal bowel cancer. I left it at that. I wish I had the whole lot scanned, because now I have increasing pain/pressure under my left ribcage, extending around the back.

      And I think my left lung capacity is reduced for some reason. I put it down to one sided diaphragm weakness but maybe there is something preventing a full inhale. Once you have ruled out a structural issue with your internal organs I suggest getting your vitamin & mineral levels checked, as well as check for any other deficiency. I have had loads of pale, greasy, undigested stools & I am concerned that I don't have the right amount of digestive bile from the organs, which caused malabsorption & wasting, then weakness, then seizure.

      I think I am quite literally wasting away, because I'm not able to nutritionally support the normal functioning of the body.

      Don't give up on life, not yet, fight for a healthier you. Refuse to feel like a victim of circumstances. Thoroughly check your body. Once your satisfied it's not cancer or something, work out moderately for 1 year, then see where you're at. This is my plan. and if it fails I will be giving up & probably lose my job & my sanity. But I'm not giving up without a fight. Maybe it's brain disease, if that's the case then so be it, at least I know I did everything in my power to better my health. I'm not leaving it in the hands of the doctors anymore. I'm doing it all. It might cost me my life savings & exercise might prove to be detrimental if something bad happens.

      But please don't give up on doing things, I have been sedentary for a long time and i know it worsened my bodily condition, my quality of life & my mental outlook/health.

      1. Check structure of internal organs.
      2. Check function of heart.
      3. Check for deficiencies.
      4. Eat meat, veg, simple carb & fruit diet.
      5. Get the engine running through exercise & blood pumping to tissues. Ditch sedentary lifestyle.

        I'm hoping this will cause epigenetic changes & promote health in my body.

      I imagine all this will take a while, so you might not hear from me for some time.

      Best of luck to everyone on this journey.

      Don't leave it in the doctors hands. Make your own plan & demand that it's followed for your own peace of mind.

    • Posted

      I've been having phlegm being caught in my throat or chest since this is happening. It's been worse this year! When I cough I can feel my bones disjoint or something, my head/neck/back, etc. I had gotten a colonoscopy too around a year ago. I also had a heart image less than a year ago and a stress test. I told my gastroenterologist doctor about my concerns with pancreatic cancer and she ordered a blood test that checks for its functioning or something - said it would be off if it was having problems. It came back normal, I wasn't convinced though. I also brought up my concern that cancer was the reason I was dwindling to my primary, he claimed that if that was the case the muscle wasting would be even; opposed to, lopsided affecting my left side more than my right. Of course these people are full of s**t, talking as if they know without the proper tests. America has the most corrupt medical industry in the world (according to many who have lived in several countries that I know), it's unlikely that they will put forth the effort to identify the problem before it gets into the death range.

    • Posted

      My breathing has been hampered too since around 2020. That's why I was asking to get my lungs checked by my doctor. He basically ignored my plea. He'll hear from me before I fall though, that's for sure. And when I say "hear," I might mean something else. 😉

  • Edited

    I just wanted to mention my thoughts about everything...

    So, the human body expresses disease through epigenetics. Which is, genes interacting with the environment.

    That means that the individual experiencing disease is down to the environment interacting with genes of the individual to upregulate & downregulate genes that ultimately culminate in the beginning of disease processes & eventually, symptoms.

    With that being said, Im giving it one more shot at pursuing doctors. After that its either give up & accept death...

    OR try & change the environment so that my genetic expression changes for the better.

    For example cutting out all processed foods & eating a diet of beef, chicken, root veg & a simple carbohydrate like potato, rice etc. Exercising regularly despite thinking it might kill me or hasten disease progression. Reduce body fat but increase core strength. Sleep in the night & do exercise in the day, be disciplined & force myself regardless of weakness, fatigue, fear or pain.

    The body is like an engine, so feed it fresh, premium oil & fuel & get the blood pumping around the tissues.

    Who knows I might have a heart attack, stroke, another seizure, my foot might stop working etc etc.

    But I have to try and make a real good sustained attempt (+1 year) of changing my environment so that epigenetic changes can take place within the genes that may promote healing/health.

    If I can accomplish the above, and it does work, and I'm able to regain what I have lost. Then I won't even be interested in finding out what happened or why. Maybe it was stress related, maybe it was a disease caused by environmental factors. At that point I wouldn't look back.

    I wish this for anyone who has an ongoing medical problem.

    Good luck!

    • Posted

      I'm beginning of think we may have a soft tissue disease. I just did another EMG and it came back normal, my last EMG was two years ago!

    • Edited

      Possibly autoimmune inflammation thing where it's destroying our soft tissue - thus affecting our muscles and otherwise. I tried to see a rheumatologist; but, they told me they'd call me back for an appointment and never did. My lack of a diagnosis and this problem has me warped with a more aggressive attitude. I'm a man so I've been an expert at stoicism in my adult years - but, I may just do something stupid soon!

    • Edited

      My grammar in my last reply is atrocious, I'm sure it's understandable regardless though!

      Edit: Didn't know you could edit replies. This website should have an option to delete a post too.

    • Posted

      Then again, I know it could always be cancer too. My underarms seem to have "growths" in them in the armpits. This happened around 10 months ago. I had gotten a CT scan (if I remember correctly) from my primary physician a few months after. He said that it came back normal; but, If I was still concerned I could get another test for it. Like...why even start with the CT scan or whatever the original test was instead of doing the proper one? I've been seeing this guy for 25 years (before for physicals and light stuff like antibiotics via sickness etc.). and now that I have a real problem I have found out how useless/clueless/grabbed by the special parts he is for the company in which he is employed. I see in some soft tissue cancers that tumors could form and it's possible this is it (lymph nodes maybe?). Somehow I became sharply depressed after yesterday in which I had my second EMG. I'm unsure why, I have never suffered sadness before and even through this I haven't had this chemical change in my brain until now. Wasting away and no hope in sight.

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