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Whole body paralysis

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JulieBadger
JulieBadger

Hi. Although I've had ME & Fibromyalgia for what is now expected 22 years I was only diagnosed last year.  At the moment my ME/CFS is getting more and more worse.  Partly I think it is because I am now understanding that the number of different symptoms I have are connected to the same condition rather than separate things, so I'm noticing them more.  However, there are more symptoms arising (as if I needed morerolleyes). 

In the last 2 months I have now experienced 3 lots of complete paralysis.  I have Functional Movement Disorder so have experienced 'fits' for years.  I have also had partial paralysis for years when suddenly I can't move my legs or I can't stand up.  However, this is everything not moving and not just after waking up.  Literally, my eyes will suddenly close and I am then stuck. My brain is working, I can hear and feel but I can't move! Not even a finger. It has lasted between 15 mins - 1.5hrs. I laid there with an open book, stuck in my hands with my eyes closed unable to even talk for an hour (must of looked funny if any body had been home).  The position if painful cannot be changed unless my husband realises and moves me.

Does anyone else suffer like this? Any idea how to stop it?  I presume it's when I'm over tired and the body shuts down?  

0 likes, 6 replies

6 Replies

  • sunwyn66141
    sunwyn66141 JulieBadger

    Posted

    Hi Julie,

    You need to see a neurologist about this.

    I have read several books by Oliver Sacks about people with conditions like this.  I could NOT read his most famous book "Awakenings" because it was too scary.  I didn't want to know about things like that.

    He treated people with L-Dopa and got them moving again after they had been paralyzed for years.

    Good luck,

    Sunny

    • JulieBadger
      JulieBadger sunwyn66141

      Posted

      Been to see the neurologist just before the whole paralysis started, about June time.  He diagnosed the Functional Movement Disorder.  Although I must admit I just talked about the "fit". Didn't think to mention the partial paralysis. I'm going to mention it to my doctor next week when I see her.

      Thanks for your Good Luck. Scaried they are going to take my drivers licence away. I live in the country with 2 kids who do clubs here and there. I can't even walk to the school from mine even on a good day.

  • littleme1969
    littleme1969 JulieBadger

    Posted

    My advise is to get back to your doctor straight away.. you need an MRI to rule out MS an other issues just to be on the safe side. I get the mini fits too.. and everything does slow and stiffen.. but never paralysed. Ive seen quite a few people who where diagnosed with ME actually end up with MS as their true dignosis and some with brain tumours alss so you must get these checked out ASAP. I too am 20 years in and was only diagnosed last year ... and ive had lots of odd symptoms over the years. AS for driving.. you need to stop that in my opinion i havent driven since having my first bout of bad syptoms due to the fact i knew i was a danger to others and myself, the mini fits can make me go offline for nathing from 30 seconds to a minute and that means i am not safe to be behind a wheel..
    • JulieBadger
      JulieBadger littleme1969

      Posted

      Thanks for the advice littleme.  I've had an MRI scan but maybe they should look at the image again? This sure is a complicated illness!!
  • scooper
    scooper JulieBadger

    Posted

    Hi Julie i have not experienced this but agree you need to seek medical advice hope you get some help x

     

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