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Why didn't anyone tell me that I won the LOTTERY ?

Posted , 4 users are following.

diagnosisisalie
diagnosisisalie

So I have been going to the RA religiously although I think he is closed minded and doesn't listen to me. He first tried me on Gabpentin (I misspelled that) and I took 2 pills out of the perscription and was in this haze where I barely spoke but cried, I still hurt, I tried running away from my familiy ( not sure why) and so on. Needless to say this medicine was stopped and we switched to Lyrica . At first I was taking 25mg at night and it seemed to help some. I am a light weight I don't have a tolerance for medicine the 1 percent that some medicines have for side effects I will have.It is just my luck. Any way the RA continued to upper the strength and then the frequency. At about 100 mg I started seeing sideeffects and pain that was still there. I had the swollen toungue , the blurred vission, the urine problems, etc. I am currently on 150 mg 3 times a day with all my other goodies. Oh , I have gained weight too, not sure how since I eat to survive as everything taste like metal or a honeybun as this helps suck up the poison from the LYRICA in my stomach. Now my insurance is not wonderful , I wouldn't even say that it is good, I would say that my deductible is paid in full so I am suppose to have no cost for anything else. For insurance reasons my insurance will not pay for LYRICA , 90 pills is 600 dollars.As they say there are 3 other kinds of medicines in this bracket that I could try before being put on the LYRICA. So the RA has been very kind giving me samples but he ran out.I am now waiting for my appointment for tomorrow to be put on something else. I am concerned about this because the last 4-5 months he has portrayed that only LYRICA exist. Are there any suggestions, ideas , things that work for you? I hurt and am not functioning to my regular daily life. I am on Cymbalta 60mg in th morning and at night . I take a muscle relaxer that I think works sometimes. I also take tramadol according to the doctor 20 mg every5 hours, but I don't take it . It doesn't work. Any suggestioNS?

0 likes, 6 replies

6 Replies

  • Kipper1959
    Kipper1959 diagnosisisalie

    Posted

    You don't actually say you have fibromyalgia but if it is have you tried cymbalta also known as Duloxetine I am on that at the moment and coping very well.  The lower dose of 30ml is not strong enough for me but I am on 60mg and that is ok.

    Some people are on 100mg but that is too strong for me.  I wish you luck and gentle hugs.

    And hope you find something useful soon.  I also take Tramadol but mine are 50mg 3-4  times a day and also work well for me.

    ​I have a very understanding Gp who is well up on fibromyalgia.  I also had gabapentin which worked well for me till I lost my hair with taking high dose of it.

    • diagnosisisalie
      diagnosisisalie Kipper1959

      Posted

      Gabapentin was horrible for me , I had severe side effects that happen in the 1 percent that take it. I have been on Lyrica , at first I thought it was helping but now I think it just gives me more issues. It doen't help. The Tramadol doesn't help either and , when I told the RA he said to take it every5 hours, I don't take it if it doen't work. I just saw the RA and he boost me up again I am on 200 mg of Lyrica. He also suggested UF fibromyalgia clinic and Cymboxtian in a pain management clinic.
  • Bee70
    Bee70 diagnosisisalie

    Posted

    Like I have mentioned on this forum before, I don't really take conventional meds but have been on herbal remedies, which have helped me over the past few months, although the process has been slow, I feel I have acheived more over the last few months than in the past 20yrs with the reduction of my pains.  I am still having problems with sleeping and feeling ever so tired.  The main pains I now have are mostly in my hands, compared to the pains I used to have in my neck shoulders and back.  Let me know if you require further information and I can message you privately.

    Gentle hugs and do take care wink xx

    • diagnosisisalie
      diagnosisisalie Bee70

      Posted

      THanks for the Reply , at this crunch time I am looking for something to get me out of pain while I have test done. I refuse to accept the diagnoses of a label with no cause , no cure, everybody eymptoms differ . To me it sounds as doctors escape label, just like they were doing with autism. I will not accept it.
  • rachel77933
    rachel77933 diagnosisisalie

    Posted

    How did your doctor appointment go?
    • diagnosisisalie
      diagnosisisalie rachel77933

      Posted

      Wow, thanks for asaking. The doctor actually showed some care this time. He uppered my LYRICA to 200 mg. and then referring me to a pain management  place for Cymboxin ( misspelled) as he just read an article on it helping Fibro paitents. He also suggested a FIbro Clinic in the panhandle of FLorida , I am on the other side of Miami , Florida , so that isn't possible. He says that I am severe and I don't have many options. He wrote me a note in trying to get the insurance to pay for the LYRICA , which they have refused to up to this point. He suggested CBT , but didn't give me a referral and therefore insurance won't pay for it . I see my GP next week and get some resu;lts on test and get more test done. I just got refused by the insurance company for a full body MRI, so we are starting with the Lumbar and then the legs and then the upper portion. I noticed a bone that sticks out above my heel on my right foot, I guess it happened when I was falling constantly. I am getting an xray on that as well. I am a mess that needs to go back to school , I am one class away to graduate. I am suppose too intern with children and if I am in pain that isn't a good thing.
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