Why do I hurt?

Posted , 6 users are following.

I have muscle weakness in my legs. & I hurt all over & I have some spots that just touching hurts.  The only thing that helped was prednisone & I was smallest dosage but now dr doesn't want me on it & she just gave me Tramadol for pain & cymbalta but they are not helping.  I don't even know what us wrong with me. my blood work is all normal.

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  • Posted

    Sounds like fibromyalgia sad that's what I have. And I also never have any energy. It's horrible. I take pain killers the pain is so bad, I would like to get off them but I haven't found anything els that helps.
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  • Posted

    Hi nan9669 Has your gp sent you to see a rheumatologist to diagnose fibromyalgia. a rheumatologist is the person who normally diagnoses fibro after other conditions have been ruled out. fibromyalgia is based on pain and many different symotoms. its trial error with fibro in finding what works for you pain wise. fibro affects us all differently in the severity of it. so what works for one person may not for another. If what your taking isnt working go back and see your gp. tell them their not helping and see what else can be offered to you.  Ihad loads of blood tests and different tests done before I was diagnosed last year after 10 years only 1 blood test came back that showed low vitamin d. all my other tests came back normal. which does normally happen with fibro. take care  
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    • Posted

      My gp sent me to every specialist you can think of, when all the tests came back ok. she finally after 10 years every test imaginable blood test galore refered me to see a rheumatologist, who after yet more testsrolleyes finaly diagnosed fibro. we have to jump through hoops to get any where. 1 specialist was very abrupt said theirs nothing wrong with youfrown if you havnt already your gp should refer you to see a rheumatologist I would insist on seeing one. Hope you get sorted out soon it does take time un fortunatly take care
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  • Posted

    With Fibro.....it's quite difficult to diagnosis, so ruling out all other options is the first port of call.  Has your GP referred you to a rheumatologist? 

    It gets quite frustrating when Drs don't listen but offer advice but have no idea how one is feeling with the pains.  Giving meds is their solution, but actually pin-pointing the problem is not important to them.

    I went down the Ayruveda Herbal remedies route and found that it is helping me but the process is slow.  I have the patience and I have been suffering for over 20yrs. I put a post up a few days ago about my experiences.

    Hope you get the answers you need on this forum.  The support is fantastic and we are all here for you.

    Take care wink x

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    • Posted

      Hi Bee how are you today hun? hope you managed some sleep last night. I woke up once then went back off. Hope work has gone better for you today? its cloudy sunshine here at least I can get my washing out. soon be friday the weeks are flying by. take care big hug from me to you xxsmile
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    • Posted

      Hi Kaz

      Still no sleep, feeling tired.  Work not so bad now, getting to know the system slowly. Weather here is not so bad, but hopefully it's going to be a nice weekend with the weather.

      Days are going by so quickly mid-week already.  Hope hubby managed to finish the painting in the bathroom.

      Have a chillaxing afternoon/evening.  Gentle hugs to you 

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  • Posted

    Definitely see a specialist, so they can diagnose you properly and they can prescribe you other medication, until they find the one that really works for you. If you just looked at our blood work you would think we were super healthy inviduals, go figure??? Best of luck.
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  • Posted

    All the symptoms of Fibro..and there's NANY more...you need to be referred to a Rhumitologist for diagnoses ,blood work us usually always normal..pressure points are helpful when your being diagnosed,,,,I've had Fibro over 30 years but it wasn't diagnosed for 10 yrs...I take only One med now it's  Amithriptilyne,,worth googling it or checking it out on this site,,,it keeps me pain and muscle spasm free and I sleep like a baby..I take it at 7pm every night...been on it for  over 16 years took a while to get the dosage right I'm on 25mg never been increased either ..gentle hugs from over the seas to you Nan..be blessed have a better day tomorrow.,:-) xxx
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  • Posted

    Hi Nan;  yes I agree with Kaz and Christine.......your 1st point of call is a Rhuematologist.....(as it does sound like Fibro....but other conditions need to be ruled out...and as I am reading a book called "Tears Behind Closed Doors",  which is re un-diagnosed Hypothyroid, and all the problems that one particular lady went through to find a diagnosis)....so, I also recommend seeing an Endocrinologist, as the more that I read in this book, I am agreeing with another lady who comes on this forum at times re Thyroid......even when our Thyroid results come back "within Normal Range", this does Not always be the case.....and A Lot of the Pain and other problems that are listed in The CFS and Fibro symptoms list, also come under this problem, too.    A rhuemy will put/give you the correct meds to trial for pain (and I read that you are taking Tramadol and Cymbalta, which others have trialled....and I know are what is the recommended meds for Fibro, but for me, and others, did/do nothing....in fact the Cymbalta made me Cry all day, for no reason)....I take the Amitriptilline that Christine takes along with Gabapentin and SL Oxycontin 20mgms twice daily for my pain controll, and am trialling 100mcmgs of Thyroxin daily,  which does seem to be giving me back some of my energy.   Perhaps, make another appointment with your Rhyuemy/GP and ask re these meds, and give yourself a Slow start on these (say start with 10mgms of Amitriptilline, 300 mgms of Gabapentin and the Oxycontin, and query the Thyroxin) and see how you go after a month......you can increase/decrease if you feel no luck/or too much or not enough.....just be aware that our bodies need to become accustomed to these meds, so even stagger, or introduce each one at different times..........another med that helps with muscle pains/spasms is Valium, but some GPs don't like perscribing this med......the other Main Natural Vitamin that we all find to be helpful is Magnesium (and Vitamin D) for the same problems of muscle weakness/pain/spasms..............hoping that this helps/gives you some thoughts?...............and success................Bron
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  • Posted

    Sorry Nan;  just wanting to add, if the Prednisone helped, has anyone mentioned Polymyalgia Rhuematica, for Prednisone doesn't normally help Fibro, but Definately does work on PMR....this is another Good/Real reason to see a Rhuematologist..............Bron
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