WHY DON'T THEY TELL US? BECAUSE THEY DON"T KNOW THEMSELVES!

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When I first joined this group it was because thought thst my recent (April 7) green light laser op was a failure because even after the op I was still not voiding as I should.

There was NOTHING wrong with the GLL op, it was a COMPLETE SUCCESS!  What then?  It seems we have identified the culprit!  My bladder muscles are not contracting as they should!

Tomorrow I begin self cathing.  I intend to see specialists to see if this is permanent or not as I have DISCOVERED THE CAUSE!

I also take meds for high blood pressure so I researched every single med.  Guess what?  One has the side effext of WEAKENING BLADDER MUSCLES.

Why don't doctors warn patients?  BECAUSE THEY DON'T EVEN KNOW THEMSELVES!

If this is not fixable I guess I'm screwed.  I stopped the med at once when I found out.

Tom

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  • Posted

    The odds are very good that any med related side effect will abate once you stop taking that med. You can also get physical therapy to strengthen your bladder muscles - if y our laser was successful, you stop the offending meds and do some therapy for your bladder muscles, I think there is an excellent chance you'll be peeing like a teenager before too long.
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  • Posted

    Thank you I didn't know that about the blood pressure medication - which one were you on?

    I did not have Green Light, however my Urologist explained that the longer you delay surgery the more chance your bladder can get out of whack. Usually it's the other way, bladder muscles are used to contracting often to attempt to void, and it can take months for it to settle down. You're saying yours don't contract at all?

     

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    • Posted

      Since you ask, I'll tell you.  But before I do I have to explain something that perhaps some of us don't know.  In the medical profession there is something called "off label" use.

      This means that a medicine designed to treat one problem has application in treating something it was never designed for.  An "accidental bonus" of sorts.

      Xanax is a drug for the treatment of anxiety and depression.  I do not suffer from either!  But I was prescribed low dose xanex 2X per day, along with my other BP meds, because the medical profession discovered that xanax, being used "off label" lowers BP.

      This was the med that I found to be the culprit!  I was only on for a few months that's why I'm hoping the damage can be reversed if even only partially.  

      The DEA calls xanax a "controlled substance" because it is an addictive drug with withdrawl consequences.  I quit "cold turkey" as they say.  I suffered absolutely NO adverse reaction of any kind.  This is another indication that my system was not "into it" to any major degree which gives me hope for a reversal.

      Tom

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    • Posted

      When they trialled a new drug on heart paients in Wales they demanded to stay on it for life. The off label use of Viagra changed their life :-)
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    • Posted

      Chances are very good that drug induced side effects go away when you stop the drig. I'd suggest doing some PT to help things along
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  • Posted

    Sorry to hear about your issues Tom

    What medication contributed to your bladder problems?

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  • Posted

    Tom, 

    check into Terazosin for both blood pressure and BPH. I don't take Terazosin for blood pressure, but it is used for that. I take it because my bladder muscles were weak, and this was supposed to help with that, and reduces BPH symptoms as well.

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  • Posted

    If you ever need a cataract surgery it could have left you with Floppy Eye Syndrome that makes the procedure difficult for the surgeon.
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  • Posted

    You know the old saying, "the patient died but the operation was a success" !

    It's sort of like that with some docs. They can get too blinded with whatever procedure they are trained sometimes resulting in "good results" which in fact leave you back where you were when you started or worse.

    What they should have done in your case was to do urodynamic testing prior to the GLL. Probably after six weeks or so of either a foley or self catherization. The six week period is the timeframe generally accepted to get a flaccid (stretched) bladder rehabilitated to whatever extent it will ever be. If they didn't do this, then it's not that they didn't know but that they were practicing bad medicine. 

    That said, at least my own personal experience has shown that the bladder can be rehabilitated beyond the six week period. In my case it was through an agressive program of self catherization. 

    So, if changing your meds doesn't work, or if they don't come up with anything better, hopefully self catherization will over time bring back more tone to your bladder muscles. 

    However, again in my case, what I found was that the minimal cath schedule the doctor usually recommend are more intended to get your PVR down to acceptable levels as opposed to rehabilitation. 

    I've posted elsewhere on this but the schedule I put myself on was designed to limit the amount of urine in the bladder to under 400cc at all times to give it time to really decompress. The 400cc therefore would be the sum of what you urinate naturally PLUS whatever comes out of the catheter. This is different from the usual recommendation of scheduling catherization so that you never cath more than 400cc at any one time. Or even worse, the schedule some people are put on where the bladder volumes are not carefully home monitored but just checked at your doctor's office. 

    So get yourself a 500ml plastic cooking cup and start measuring BOTH the natural void and the catherized void. If the sum is over 400ml, then cath more often until most of the time it's under 400ml. Or even under 300ml. Worked for me, and today my previously flaccid bladder performs about 80% of the time almos as goo as new with PVR's often under 50cc.

    Uim

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    • Posted

      Didn't fully explain the urodynamic testing, but in short it should tell you BEFORE the operation whether or not the operation will be successful in terms of properly empting out your bladder. There are studies out there recommending this prior to every TURP, and I assume the same principle holds true with GLL. If your docs didn't do this, consider how good the rest of their advice is and perhaps then look elsewhere for a medical opinion moving forward.

      Jim

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    • Posted

      I was in a similar situation to the original poster. I had urodynamics testing, and was diagnosed with an atonic (floppy) bladder. The doctor still suggested either TURP or some other procedure like that to remove any restriction or blockage. It makes sense, as a weak bladder doesn't have to work as hard to get past any blockage. 

      So maybe the laser surgery wasn't a total waste. Perhaps if the bladder can be rehabilitated, everything will work fine.

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    • Posted

      You make some good points. And I'm not saying that the GLL wasn't needed, just saying that the OP should have had both a pre-operative catheter (or CIC) and then urodynamics prior to GLL so that the outcome could be better predicted. Then, at that point, the OP could have made a more informed decision plus would have not have been left after the operation "how can this be possible" as it appears he was. Anyway, I share you optimism moving forward re bladder rehabilitation, especially if he follows a somewhat agressive CIC program measuring volumes, etc. 

      Jim

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