WHY DON'T THEY TELL US? BECAUSE THEY DON"T KNOW THEMSELVES!
Posted , 7 users are following.
When I first joined this group it was because thought thst my recent (April 7) green light laser op was a failure because even after the op I was still not voiding as I should.
There was NOTHING wrong with the GLL op, it was a COMPLETE SUCCESS! What then? It seems we have identified the culprit! My bladder muscles are not contracting as they should!
Tomorrow I begin self cathing. I intend to see specialists to see if this is permanent or not as I have DISCOVERED THE CAUSE!
I also take meds for high blood pressure so I researched every single med. Guess what? One has the side effext of WEAKENING BLADDER MUSCLES.
Why don't doctors warn patients? BECAUSE THEY DON'T EVEN KNOW THEMSELVES!
If this is not fixable I guess I'm screwed. I stopped the med at once when I found out.
Tom
0 likes, 12 replies
oldbuzzard tom512836
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mike588 tom512836
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I did not have Green Light, however my Urologist explained that the longer you delay surgery the more chance your bladder can get out of whack. Usually it's the other way, bladder muscles are used to contracting often to attempt to void, and it can take months for it to settle down. You're saying yours don't contract at all?
tom512836 mike588
Posted
This means that a medicine designed to treat one problem has application in treating something it was never designed for. An "accidental bonus" of sorts.
Xanax is a drug for the treatment of anxiety and depression. I do not suffer from either! But I was prescribed low dose xanex 2X per day, along with my other BP meds, because the medical profession discovered that xanax, being used "off label" lowers BP.
This was the med that I found to be the culprit! I was only on for a few months that's why I'm hoping the damage can be reversed if even only partially.
The DEA calls xanax a "controlled substance" because it is an addictive drug with withdrawl consequences. I quit "cold turkey" as they say. I suffered absolutely NO adverse reaction of any kind. This is another indication that my system was not "into it" to any major degree which gives me hope for a reversal.
Tom
derek76 tom512836
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oldbuzzard tom512836
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mal7896 tom512836
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What medication contributed to your bladder problems?
Motoman tom512836
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check into Terazosin for both blood pressure and BPH. I don't take Terazosin for blood pressure, but it is used for that. I take it because my bladder muscles were weak, and this was supposed to help with that, and reduces BPH symptoms as well.
derek76 tom512836
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jimjames tom512836
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It's sort of like that with some docs. They can get too blinded with whatever procedure they are trained sometimes resulting in "good results" which in fact leave you back where you were when you started or worse.
What they should have done in your case was to do urodynamic testing prior to the GLL. Probably after six weeks or so of either a foley or self catherization. The six week period is the timeframe generally accepted to get a flaccid (stretched) bladder rehabilitated to whatever extent it will ever be. If they didn't do this, then it's not that they didn't know but that they were practicing bad medicine.
That said, at least my own personal experience has shown that the bladder can be rehabilitated beyond the six week period. In my case it was through an agressive program of self catherization.
So, if changing your meds doesn't work, or if they don't come up with anything better, hopefully self catherization will over time bring back more tone to your bladder muscles.
However, again in my case, what I found was that the minimal cath schedule the doctor usually recommend are more intended to get your PVR down to acceptable levels as opposed to rehabilitation.
I've posted elsewhere on this but the schedule I put myself on was designed to limit the amount of urine in the bladder to under 400cc at all times to give it time to really decompress. The 400cc therefore would be the sum of what you urinate naturally PLUS whatever comes out of the catheter. This is different from the usual recommendation of scheduling catherization so that you never cath more than 400cc at any one time. Or even worse, the schedule some people are put on where the bladder volumes are not carefully home monitored but just checked at your doctor's office.
So get yourself a 500ml plastic cooking cup and start measuring BOTH the natural void and the catherized void. If the sum is over 400ml, then cath more often until most of the time it's under 400ml. Or even under 300ml. Worked for me, and today my previously flaccid bladder performs about 80% of the time almos as goo as new with PVR's often under 50cc.
Uim
jimjames
Posted
Jim
Motoman jimjames
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So maybe the laser surgery wasn't a total waste. Perhaps if the bladder can be rehabilitated, everything will work fine.
jimjames Motoman
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Jim