1. Community
  2. Women's health
  3. Lichen Sclerosus

Why I want to change doctors

Posted , 8 users are following.

jules1100
jules1100

In 3 weeks I have an appointment with a gyno who specialises in vulval diseases and I'm hoping it goes well as I'm not happy with my current doctor. He's a specialist gyno who seems familiar with LS but his approach and treatment plan is making me highly anxious.

I was put on steroid twice a day for 1 month then once a day for another month. He tells me to stop the steroid as all is looking better (despite the white patches still being there and now my anus is playing up) and to only apply steroid when I have symptoms or a flare up. He now has me on topical estrogen ointment 2x a day - which is fine as the skin needs some TLC badly. But the approach with the steroids makes me anxious. Firstly the white patches are still there and secondly I was asymptomatic for god knows how long before my gyno happened to notice white patches on my vulva when I went to see her complaining of an irritated vagina after tampon use. I had no itching or anything. So how will I know when to apply the steroid? The LS could start running rampant again without me knowing.

After watching Dr Goldsteins video I'm under the impression that the steroid should be applied 1-2 times a week as maintenance.

Hoping the new doctor can be a little more clear. I want to feel confident in a treatment plan not unsure and anxious.

1 like, 16 replies

16 Replies

Prev
  • caro2013
    caro2013 jules1100

    Posted

    Getting a second,third opinion etc... Is ALWAYS a good idea. It is your body, your health, noone else will ever take better care of it than yourself! It took me 4 doctors to find something that works for me and now my LS is under control and I live a pretty "normal" life again! The first obg to discover I had LS, prescribed me the wrong medicine  ( too bad I don't remember the name of it), it made symptoms worse and my skin was getting thinner and thinner instead or repearring! I went through hell for 2 years! I found a dermatologist that helped me the most and I use Protopic and Emu oil now. It works amazing for me. Find a new doctor ( obg or dermatologist) and discuss your options. Wishing you the best.

    Caroline

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.