Why is there so little known about LS
Posted , 1 user is following.
Sorry this is a bit of a moan:
It makes me so annoyed that not many doctors or people know about vulva LS. This is such an awful painful disease and feels like no one seems to care. I think more women's magazines, newspapers should write articles about it. Some women can go for years going from doctor to doctor without a diagnosis - if they read an article in a magazine or newspaper explaining symptoms it might help them be diagnosed earlier before it is too late and a lot of damage has been done.
I wish someone would do more research on it so one day there will be a cure.
1 like, 9 replies
Guest
Posted
Guest
Posted
Once I am on the mend I think I will start writing to magazines/papers to see if they will write an article on Lichen Sclerosus. I know it can be embarrassing to talk about our private parts but really think talking about it helps.
Mine started off at the end of October when I was pregnant and ended up having a miscarriage at 10 weeks. I had 9 internal scans which made things 10 times worse and ended up with lots of tares. I did not know what I had then.
At the moment I am very down and am in constant pain and having difficulty walking due to the burning pain and soreness. This website is helping me come to terms with what I have and making me feel like I am not the only one who has this awful disease.
Poppy x
Guest
Posted
We are all shocked when first diagnosed but once you start to daily maintain your vulva things will improve physically and mentally. Wash only with aqueous cream (soap free). Then use your steroid cream. Then use a barrier cream Paladin you can order it of **** its great to relieve soreness.
LS can be related to many things :Hormonal imbalance - Emotional stress etc Chin up
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Guest
Posted
Also Thanks for advice, mayocovie and I agree with your points...
[color=blue:6f6a6f5dc2][size=9:6f6a6f5dc2][b:6f6a6f5dc2][i:6f6a6f5dc2](Sorry but Patient Admin have removed either a telephone number, an email address, a postal address and or web address, from this posting, as it is the policy of Patient UK not to publish these on this forum.
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Guest
Posted
These Patient Information leaflets are also available to a vast majority of doctors for use in their consultations with their patients.
Regards
Lin
Guest
Posted
[color=orange:98e9a1e7b2][size=9:98e9a1e7b2][b:98e9a1e7b2][i:98e9a1e7b2](Sorry but Patient Admin have removed either a telephone number, an email address, a postal address and or web address, from this posting, as it is the policy of Patient UK not to publish these on this forum.
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Guest
Posted
Re: Patient Information Leaflets
Would you be able to inform me as to how I could get a copy of these leaflets. I live in Ireland and have NEVER seen any Information Leaflets on this subject.
Guest
Posted
Patient UK Content Manager
Guest
Posted
Thank you for your reply. Would you be in a position to explain why the LP forum is no longer being used by people suffering with LP. Does another forum exist perhaps. Would really appreciate an answer to this question.