Why Me ?

Hello there my names toria I'm 24 and I have fibromyalgia for 7 years now but I only got diagnosed a couple of months back. I just wanted to let you know that you aren't the only one I find it hard to walk and sometimes use crutches and I always get looks and questions. It gets unbearable to deal with especially the pain and tiredness. I think because we look normal it's hard for people to realise how much we are suffering I certainly get no sympathy even from my family. Doctors told me for years it was all in my head and it was just stress I thought I wa dieing! I have 3 small children aswell so I found it so hard even to get out of bed. Im sorry to hear you are suffering so much it is honestly crippling. Its so nice to know that I'm not the only one that feels this way

God i am sane after all. I am so glad that i am not the only one and i know what that the pain is so bad you just want to stay in bed i do hope you have the help that you need i am getting the help from my rhumatoid doctor and my own GP this is all as well as having ostioarthritas and alot of other things wrong I am the only one in my family but i had the delivery of my wheelchair last month and just it being there is depressing in itself but some days would welcome it with open arms but i cant coz iam putting on weight and feel that my husband cant push me coz iam too fat but i am not a good eater so why am i putting on weight ?we need to stay in touch but am not to good at this tech thing prefere txting myself but hope to stay in touch please as i dont feel alone so much now and thanks

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Lol exacktly my thoughts I honestly questioned my sanity many times. Aw thank you very much the good thing is I have a new doctor and since I have been diagnosed they seem to want to help me more do I do hope I can get the right help to. Oh my goodness I can't imagine how bad it must be to have illnesses on top of fibromyalgia because I know first hand that alone can take you to the limit. I understand your feelings on the wheelchair I mean it's such a big help but it's such a huge reminder of your problems an that your limited in life, please don't feel d

Sorry I posted accidentally. I was just saying please dont feel down with your weight if your anything like me it'll be down to this freezing weather it makes te pain so much worse so naturally we can't move round a lot or do much at all to be honest, I myself have put on a lot of weight. I'd love to stay in touch and I don't mind exchanging details if you prefer x

Hi All,

I have found that meditation helps a lot with coping with the pain, I have become to learn to accept it and just deal with my day to day living. I say to myself at least I am not going to die yet and life is still wonderful.

Love and peace James

Hi James that is a great way of thinking, I have to say my frame of mind is much better to what it used to be, there were many times when I thought I couldn't survive another day an i honestly thought I would have a break down. I must admit that was mostly before I had been diagnosed no one would listen to me an therefore had no medication for the pain and the tiredness was abnormal it was a real struggle. Now I know what it is and I have some pain killers I feel a lot better in myself but I still need to get control of the pain, I feel it does restrict me but I have a pain clinic visit soon so I hope I'll get to your stage and feel good.

If anybody fancy's giving meditation a try check out a Brahma Kumaris centre in your area, it is free and a working progress but gets you there. When I first went I felt half crippled, was walking with a walking stick, within 6wks the walking stick was binned. I still take pain killers, but I had the confidence to work with my GP and test myself on what worked and what didn't,for a long time some painkillers just made me totally unwell and in the end I just said enough was enough and through trial and error found what was right for me, in the end if you make the effort your GP will applaud you and assist in any way they can. I quite often did research on fibromyalgia and that helped myself to understand fully what it is all about.Some say diet is the problem,or fizzy drinks (asphatame) etc etc. I am now a vegetarian do not drink alcohol at all and try to eat as pure a food and drink as I can. I still have the condition, the point is I am making the effort to try and make a difference

Well psychochief, I take it you work for a pharmaceutical company or similar, if I had the funds I would definitely be trying alternative medicine as I know the damage that ibuprofen,gapapentin,omeprozole and other drugs can do to my body through research, the drugs do work but the long term damage they cause is for concern.

I don't think this is about being pro or anti-industry. It is about promoting sensible science. Sensationalist statements such as "medicines being poisonous" or factually inaccurate statements that all chronic illnessesbegin in the gut serve no purpose in a rational discussion. Yes medicines do have adverse effects, which need to be balanced against their benefits for alleviating pain or fatigue, but if this includes complementary therapies such as exercise or yoga then this can only be a good thing.

hiya jim,

im afraid you obviously misunderstood what i wrote jim, the guy that was posting was no more than a charlatan using this site for pushing his snake oil and potions.

I do think certain foods and drink can make some symptoms worse but then a poor diet would affect anyone. I am the same I try an eat very healthily make everything from scratch, it does help a little but like you said I still have this condition. There are endless theories on what are the causes and what makes it worse but there is no evidence backing any of it, which does not help the sufferers. I think your right jimtorry all we can do is see what works for us an do the research. Everyone is different so I guess what will help one person won't help another.

For some reason I can't see the previous comments from ther other people so I can't even comment

sorry psychochief, I must have read the wrong post I didn't see anything about snake oil or potions as that I would be sceptical about.

Hi all,

I removed the post in question as the user was promoting his own blog/selling site(s) and had been doing the same throughout the forums. While we are happy for users to post about any remedies whether medicinal or natural we do not allow posting in this way.

Sorry for causing any confusion.

Regards,

Alan

Emis Moderator

This is for the blog moderator, i know what f/m is and have taken great steps to eliminating what can cause f/m, the only thing left that could effect me is our water or pain killers,i cannot understand why my condition is worsening all the time.

So what I would like to know is what causes f/m? I cannot get an answer from anybody else I have tried.