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Hi , my mum was diagnosed at 28 with COPD after being given penicilin for a chest infection that she reacted badly to. She lived until she was 61. She sadly passed away only a few weeks ago. I want to know why that as family was not kept informed as much as I could have been about the end stages of COPD. Christmas 2014 mum was diagnosed with puenmonia and had 15 admissions into hospital up until she passed in March of this year.....each time I was told that she was getting better and each time they sent her home I was told that she was being admitted into 'vertual hospital !'....On her last trip into hospital it was a Friday night and I left her still speaking and acting like she would be home the next day. Only to find her in ICU on my visit the Saturday wearing CPAP machine.....I asked if she was receiving pallative care and got the answer 'no'. She was then transfered to a full face mask (a bit like a fire man) again I asked if she was getting worse...again 'No'. She spoke no words for the next 3 days as the 02 was drying her so badly that she couldnt speak,eat and barely swallow. In the early hours of the Tuesday morning she sat up and told me to get my brothers as she was dying.40 minutes later she was unresponsive. They took me to another room and explained that my mum was infact dying and they were going to remove her medication and machines. They did this and let her fight for her life. Something I would not wish on my worst enemy to have watch....4 and a half hours later she passed away in my arms. Throught out the ordeal they leave it upto the relatives to decide when modizilam is needed for agitation.....I am so cross that they didnt tell me how low her blood gases were and that she was infact hours from death. I also dont understand why it was my decision as to when to give morphine etc ...mum was unresponsive ...how was i to know?
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