Why wont GP allow me to see RA soecialist!
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My joint pain and imflammation started over a year ago and all bloods came back negative. At this point GP refered me to early diagnosis clinic. Where my bloods came back negative and specialist said my hand swelling wasnt enough to make a diagnosis.
Managed to get a referal to orthopedics who said i certainly have immflamatory arthritis and to take paracetamol and anti immflamatories on a more regular basis. But no further help to diagnose what immflamatory arthritis. No 'decernable degeneration' noted on my xrays.
Have referred myself to physio and podiatrist as i can no longer walk bare foot. I have had to increase the size of my rings as swelling is so bad in hands. All pain and inflamation is symmetrical and i have a 'strong autoimmune' family history according to the ra specialist. Immflamaotries arent always reducing my swelling. Hands, wrists, knees, ankles, feet, hips and shoulder blades affected. Still getting negative bloods results and cant get past my GP to see the so called special interest general surgeon that make diagnosis in the area i live in.
So do i go to the GP AGAIN and insist on being referred to specialist? Should i ask for scans rather than xrays? Is it ok to just keep taking anti immflams and pain killers and trust the GP to send me to specialist for proper diagnosis and DMARDS? How bad do my symtoms need to get?
1 like, 7 replies
Littledog Fieldmouse73
Posted
stephen54311 Fieldmouse73
Posted
tenthirtypm Fieldmouse73
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Light Fieldmouse73
Posted
The problem to some extent is an enormous shortage of rheumatologists, especailly tough in more rural areas, so they are reluctant to refer you
if they don't think it is absolutely vital.
However, if you change GPs on that condition, someone might sit up and take notice.
Good luck!
EileenH Fieldmouse73
Posted
I have an inflammatory arthritis that a GP can manage well in that the only option for management is prednisolone and there is no joint damage to worry about. But if it weren't that particular option I would expect to be under a specialist unit for diagnosis and then at least once a year for follow-up. GPs cannot use the best medications, only specialists can do that.
Insist you want to be referred to rheumatology, go to a different GP in the practice if necessary and if that doesn't work even after an "interview" with the practice manager, change practice.
Paracetamol has been shown in clinical studies to be no better than placebo for pain management and it poses risks for liver and kidneys (that's newish). It has no inflammatory effect - and long term use of NSAIDs (ibuprofen and its friends) is not good for stomach and cardiovascular system. You shouldn't be left on them indefinitely.
andrew_08416 Fieldmouse73
Posted
I would say you need a new GP, one who will take you seriously. Also go to the GP when your symptoms are worst and dont wait for them to calm down first no matter how much you just want to rest.
A GP can only treat what he/she can see or proof. My GP has been fantastic, I went to see him when I could barely move. Muscles in both my legs and arms where scorching, I could barely move, you could see the tierdness on my face despite sleeping well over 12 hours a day. i was out of breath and had also told him about the symptoms he couldnt see.
Joint pain is hard to diagnose there are some conditions which dont show up on xRay but still produce inflammatory results. so dont be put off.
From the start my GP knew I was/am unwell. we both thought it could have been viral to begin with, and then possibly chroinc fatigue but then other symptoms quickly developed. As the scorching muscle pain calmed the joint pain came on, it was a gradiant between the two. he said it is likely that the joint pain was always there but masked under the muscle pain.
Anyway ... he has also proved an inflammation with very high LDH levels. with the extreme levels of fatigue, muscle and joint pain he started to think towards an arthritic condition, and at the begining of the year I developed a butterfly face rash - tested for Lupus came back negative. My GP still strongly suspects that I've Lupus, there is a history of both RA and OA in my family but not lupus so we've a little bet on - whose right. I think its RA. and he thinks its Lupus.
My GP also said that paitents can test negative and there is such a thing as zero or negative test result patients and that a Rhemy will be able to carry out more specalist tests.
I've been refered more then 6 weeks ago, although I've also been assigned on I still dont have an appointment as yet. last night my GP said to give them a call today.
Im telling you this because it woudl seem you have lost hope in your current GP, and to assure you that there are some really good ones out there.
You know your body and when you are well or not. Get a second opinion, but do not expect the new GP to have looked at your notes previously - tell them everything,
Hope you fell better and that this helps
warmest regards
Andy x
stephen54311 Fieldmouse73
Posted