Why56

Posted , 3 users are following.

Although friends, family and employers try to understand and sympathize with us they have no idea how really feel and our symptoms. I feel very isolated, and at times, ask why me. On 1 occasion. I said to the person concerned, that my mildest migraine would probably knock them off there feet. I my self have had them sonce my teens due to study. I started taking an over the counter migraine tablets, but was eventualaeventually talking an exssive amounts by a friend to consult my doctor who after numerous tests diagnosed migraine. Occasionally through the years I have had at times where I been mimigraine free months even years. But over the last 20 or so years the intermission has become less. Now I rarely get a few weeks without them. On quite a few occasion I have been hospitalized, on all occasions I have been sent home, just been and told it's a migraine. For the past 10 years I have been a neurology patient. My migraines a so very severe they are , and are controlling my life. I have just had 1 that lasted over 3 weeks, gradually did subside but not go away. Now I just feel from a medical point of view I'm at the end of the road. The neurology dept have run out of medications that they can proscibe, and say there is nothing else they can do. This is devasting. They just say keep taking my tablets prescribed. I too have a problem with my brain arteries ( arteial isscaemia). At times I have even cocontemplatedcocontemplated suicide, but then think of my family. I try to ex plain to people thatsthat It is like having an un-exploded bomb in my head.

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4 Replies

  • Posted

    Hey,

    I am so sorry your doctor is not helping you. Please do not give up! There are many new advances in treatments. Last January I started on monthly Aimovig shots. They have decreased my headaches to only 7-10 days a month versus the almost everyday ones I had before starting these shots. If your doctor does not prescribe this medication, find a new dr. No one should have to suffer while being told we can not do anything further!

    Good Luck!!!

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    • Posted

      Hello, I saw your post about Aimovig. I have tried about every migraine medication category option without success and this is the next option. Can you please tell me more about your experience with, how its helped and any side effects? Thanks:)

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    • Posted

      Hey,

      Sorry you are having to deal with migraines. I started on the 70 mg injection once a month. I could not tell any difference in the frequency of my headaches, which at that time was almost everyday. After 2 months I started on the 140 mg injection. It took about 3 months to get the rebound headaches to stop, but now I usually only get them the last ten days of each month. Last month was the exception I didn't get a headache before time for my next shot but I did feel the exhausted feeling, like I get when a bad headache is starting, for about a week.

      The only side effect I have is chronic constipation. I can't skip a day taking the max dose of a stool softener and every other week I have to take a laxative. I am not feeling Nauseous every morning, dizzy, eye twitching, squiggly lines in my vision , exhausted. It has changed my life now if I feel a small headache coming on I can just take an Advil!!!

      Good Luck!!! Hope it works for you!

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    • Posted

      Hi, thank you for replying. That is good information. Ive read that a lot about the main side effect. It sounds like most everyone has had to come up with something added on to help combat that. I think it gets to the point with frequent migraines that we have to outweigh how they affect our lives and what we are missing out on to consider trying something new. I'm glad it is helping you feel better:) Blessings, Julie

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