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For about one year now I have been experiencing neuropathy in multiple areas. I first noticed some numbness in my left arm. Within a few days I started to experience numbness all the way down the left side of my body and both legs. In the early stages, I also experienced very intense headaches, unlike anything I had experienced before. Over time I also experienced symptoms in my right arm, although not as intense. I can feel a light burning sensation or irritation in the ulnar nerve of both arms, starting at the shoulder all the way down to my pinky finger. The sensations in my legs is stronger on the back of my legs and the bottoms of my feet. The sensations also affect the back of my scalp and the left side of my face, although I have not experienced complete paralysis as some victims of Bell’s Palsy do. I have not experienced vison problems, swallowing problems, or memory problems.
I have been tested for all of the usual suspects, including vitamin deficiencies, diabetes, and auto immune diseases like MS. I have received a CAT Scan and MRI of the head and neck (with and without contrast). I have also been tested for Lyme Disease – I had a couple a positive markers, but nothing strong enough for a positive diagnosis. I do not have a history with anxiety and my doctors do not think my symptoms are in line with anxiety induced neuropathy.
The intensity of the symptoms comes and goes. I have maintained a healthy lifestyle for many years (I’m 42 years old). I have experimented with very strict anti-inflammatory diets, gluten-free, diary-free with no real progress. I am fortunate to be able to continue a basic exercise program and feel like exercise may have a calming effect on my symptoms – if nothing else I’m sure there are psychological benefits. At this point my doctors are calling my symptoms idiopathic (short for “we have no idea”) – which is not very reassuring. Any thoughts on other paths worth investigating are welcomed.
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