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My wife has suffered from fistulas and abbesses in the groin for 5 years. She has been passed around from one specialist to another specialist she has been finally diagnosed with Hidradentis Suppurativa and her new Hospital consultant has offered her a coarse of infliximab.
There seems a lot of nasty things that can go wrong with this treatment, so has anyone on this forum had this form of treatment?
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Hi I've not heard of this but I'm the same be to so many hospital appointments. I'm going to try changing my diet I'm going to try gluten free as I had an allergy test and it came up gluten and aspiratine the replacement sugar. And I'm being tested again for coeliac as I have lots of the symptoms. The dermatologist put me on dermol soap and I got bath stuff from amazon which has really helped with the terrible itching. I wish ur wife luck and so nice to hear from a supportive husband
I've been suffering for over 25 years now
I've tried influximab but sadly it made no difference to me 😢
The only thing that I can say gave me a break from them growing as I get between 30/40 a wk I had major skin removal had to have sections done separately as 64% of my body is bad took 3 years under my arms for anything to grow was hard and painful and took 7 months to heal but the pain we go through was worth it
I seen on here that changes on your diet can work (dark shades )
So far not found that working for me but has for others
I've heard humira has worked for others also
Thanks for you repl
I wanted to know how a relative healthy person got on with infliximab and adalimumab as my wife had a heart attack back in 1984, which is a long time ago, but in the last two years has develop Arrhythmia (abnormal heart Beat) and she also has COPD.
Her current consultant seems a bit gun hoe about using infliximab, but I am concerned that some one with those conditions shouldn't have there immune system lowered any more than it is already
I'm sure I had a test for TB before I had been given it
And I'm sure that I did blood test quite often
Yes it makes your immune system low but I always made sure I had my flu jab always bath in antibacterial with I get as a prescription
Keep your antibiotics going but make sure you get changed regularly as you do start to get immune to them
I think it all comes down to the individual on what you want
I will and have been a test subject for many years trying out new stuff just so I can go to work with out being in pain or waking up smothered in blood ect ect
I gave it ago hoping it would help me she can always come off them moment she feels they are not for her
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