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Will having RA certainly mean deformity?

Posted , 3 users are following.

manish_56401
manish_56401

Hi, I am 25 year old female. I was detected RA in 2013. I started with medications immediately after a month of ankle swelling. My RF was 54 and Anti CCP was 40. I am currently on MTX 15mg, hydrozycholorquine 200 and Folic acid tablets. However my current test results say RF as 34 and Anti CCP as 453 UI/ml !!!! Sed rate of 19, CRP of 0.413.

I was wondering that if we do early diagnosis and start treating RA, will higher CCP still mean deformiity in the future or the anti CCP value swings based on the control of the disease? 

Thank you

2 likes, 5 replies

5 Replies

  • jeanette2838
    jeanette2838 manish_56401

    Posted

    Hi, how do you find out what your RA levels etc are?? I got diagnosed last year im 39 and I would also like the same answers as you, as I feel like an old lady already most days and I am hoping they sort my meds out yo help with this, I am a very active person I am a school cook so on my feet all day, I am on the highest dose of sulfasalazine (3000mg) a day, which I dont think are working (im just trying to get this sorted) they make me exhausted and the pain is still there, what are your meds like?
    • manish_56401
      manish_56401 jeanette2838

      Posted

      Hi jeanette2838,

      I am sorry that you have pain. Its better to be in touch with Rheumatologists whenever you have flare. 

      RF, Anti CCP, CRP are few blood indicators which are claimed to give diagnosis and prognosis of the diesease. You may order them in your regular blood check ups.

      My medicines are Methoxerate(MTX) 15mg, Hydroxycholorquine 200. I take MTX once a week. It makes me super tired. I have lost weight in a year, which worries me as if I am in high dosage despite my activity. I need to check with my Rheumy. However my anti Ccp has gone high, so got to take that as well into account. 

       

    • jeanette2838
      jeanette2838 manish_56401

      Posted

      Hi manish,

      Thanks for the information I will ask at my next blood test, I have them every 4 weeks but never been given any results, they just send them to my consultant.

      Ive just had a nerve test done on my hands as I keep losing grip and my hand seizes up, also had an ultra sound on my foot which they have now refused to inject, as its showing no inflammation on the joint but my foot and ankle are very visibly swollen and causing much pain. It all started in my knee which at the minute is managable.

      I have to wait to see my consultant once results ard in to find out whats going to happen, I have been on phone to them for last few days as its quite annoying that nothing is changing. Hopefully they get it sorted before anymore damage is done.

      I hope you get sorted quickly and the answers you need.

    • manish_56401
      manish_56401 jeanette2838

      Posted

      Wish you are relieved out of pain. Life is much more than to keep worrying about this. Hope you ll get relieved out of pain soon. 

      Good luck 

  • EileenH
    EileenH manish_56401

    Posted

    There is no real way of knowing - however, correct use of the right DMARDs will help to avoid the long term problems of deformity and it is very rare that you see the twisted joints that used to be so common. It depends though on you finding the right medication and you using it properly. Y

    But yes, early diagnosis and prompt and aggressive management makes for a long term better result. Discuss it with your doctor though if you want such detailed analysis.

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