Posted , 3 users are following.
I am 22. I have been diagnosed with HS. I want to know whether at any point of time in my life will i require a surgery. I have had few boils in the past and right now i have 3 but they are not deep and not extreme. Also if i take take medicine can it be "stopped" or frequency be reduced and by how much.
0 likes, 8 replies
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aleakay sampitroda
Posted
sampitroda aleakay
Posted
I have only boils that too small ones with no pain. Actually I wanted to know about the progression the disesase like if as I have started taking the treatment and as it is not that bad so will it worsen further or I will be able to hold it up! Well whatever i have read about Humira is that it's very promising but also that weakening the immune system thing is really scary. This must be like last of the last resort. Hope you get well soon.
matt03271 aleakay
Posted
aleakay sampitroda
Posted
Have you been diagnosed? I remember my first one. Unfortuantly there is no cure for HS. If you are diagnosied you will deal with it forever. However, my derm did say you can "control" it with different methods. I have tried everything. They told me to take bleach baths, pills, washes. Birth control helped a lot. But not with sinus tracks. So Humara is my last hope I think. I hope all goes well! Good vibes (:
aleakay matt03271
Posted
matt03271 aleakay
Posted
Very small. I still take it just not as frequent when I started because I am downing the mg's slowly so I can be off it by January or Feb of 2018. Only side affects I have delt with is a stuffy nose or cough for a week or two. Nothing major I feel that happens to alot of patients due to the lowering of the immune system. I hope it works for you as it has worked for me!
aleakay matt03271
Posted
I am very excited. My derm said I would probably be on it for the rest of my life. Hopefully they are wrong. But I am glad it worked for you. I'll keep my fingers crossed lol
sampitroda aleakay
Posted
Yup I went to see a derma and showed my boils in the groin and armpit area and within a sec he told me that it was HS. They took a swab of pus for pus culture and now i have got the reports. He has given me medicine for 1 week and told me to show after 1 week with my reports for the time being he has given me Lizostar (anti-biotic) and Nadibact cream. In my report it is written Pseudomonas Aeruginosa. Although my boils have subsided but I don't know whether it is because of medicine or naturally but this time it was the worst. And humira would be definitely my last resort.