Will this ever go away?
Posted , 5 users are following.
Hi, I started with VN in April this year. I started with just dizzy spells but then it became permanent. I also had nausea and my eyes were affected too as they could not focus so walking and movement,even as a passenger in a car became difficult. ( driving was out of the question). I went on sick from work as i work in a busy high school so lots of people around with stairs etc...nightmare!. After visiting the Dr several times I was finally sent for tests at Seacroft hospital,Leeds, where VN was suggested. I was sent for an MRI scan but couldn't go through with it as i suffer from claustophobia. I was given a sheet with excercises to do with my eyes,balance etc but after a while i decided to join a gym where i find going on a treadmill helps me as i only feel dizzy now when walking. I still suffer nystigmus but not half as much as i did in the beginning so things are improving,slowly. I don't feel anxiety too much as i will not let this rule my life. I still go out with my husband( who's been my rock) we go on holiday,and i still have my wine! The only thing i miss is driving ,my independance has left me feeling that i now have to rely on other people to take me shopping, to work etc. I just wish this dizziness would go away but until it does i will carry on as best i can. I began taking vitamins last month as i knew i was returning to work also a flu jab as i don't want another infection invading my body! I can see improvements but its a slow process and i hope one day i will be back to feeling normal and driving again.
2 likes, 13 replies
debbie82116 angela11539
Posted
Hi Angela....i've suffered from VN on two occasions...it's nasty but it does go away! The only thing that helped me was Vestibular rehab...exercises given by a rehab specialist for your eyes and head to retrain your brain. You have suffered damage to your balance nerve (likely a virus) in one of your ears and when your brain gets one good signal from the good ear and one corrupted signal from your bad ear, it gets messed up causing dizziness and nystagmus. Once your brain has learned to cope, you will feel better. I'm not a doctor but this is how it was explained to me.
Best of luck Debbie
AE19 debbie82116
Posted
I, too, am in the process of recovery from VN, keeping on with rehabilitation as well. I am currently 4 months in.
How long did your VN take to fully compensate? Also, what was it like when you began to notice it was almost gone (i.e. the occasional head pressure, dizziness less frequent, etc.)?
debbie82116 AE19
Posted
So sorry you are suffering! IT WILL GO AWAY! My first bout last two years but I knew nothing about vestibular rehab until i was more than a year and a half in. My second bout last 4 months because I knew what to do!! The exercises are important but so is keeping anxiety low. Anxiety feeds VN!
Keep positive, exercise, eat well, keep hydrated. It will go!
Good luck!!
AE19 debbie82116
Posted
Thanks so much for getting back with the upbeat message! Your first time sounds like a doozy. Very happy it came and went much faster the second time. I'm on month 4!
Things are much better but the VN is not entirely gone. Everything you list is key, especially keeping anxiety to a minimum.
Any exercise you found especially useful? Been doing a lot with the eyes closed to really challenge the inner ear.
Best!
debbie82116 AE19
Posted
AE19 debbie82116
Posted
Hayhue angela11539
Posted
Your determination is inspiring! You're doing great. Best wishes to you!
melody08508 angela11539
Posted
Hey Angela mine also started in April (April 7 to be exact). I too wish the dizzies would go away. I thought I had dealt with my anxiety but Iv had a few new symptoms, one being pins and needles and the second being a tingly face. It's caused anxiety (which I actually think is why my face tingles). I also feel nausea again. This illness is horrible but I believe we will get back to 100%!
angela11539 melody08508
Posted
Didn't have a good day today. Back at work with my phased return coming to an end next week, which made me quite anxious thinking about it. Not sure if i'm ready for full time just yet
thought my anxiety was all but gone, obviously not. Just a set back i hope!
melody08508 angela11539
Posted
It will be. And it's normal to feel this way. U will be ok. Just take it slow xx
AE19 angela11539
Posted
Take heart! It is common to experience a setback but through the minor fall there will be a major lift.
I've had VN for almost 4 months and can empathize with the process.
It can be tough and it's easier said than done, but don't let the anxiety rule you! Reign it in.
pili41981 angela11539
Posted
angela11539 pili41981
Posted
Hello. No I haven't fully recovered but I am making progress. At times i'm beginning to feel normal ( forgot what that felt like!) especially at home. My dizziness is now mainly walking also my balance is a bit unsteady at times but I still have nystagmus in my eyes, although again its a slow progress. How are you doing? Been back at work now since October so still finding what I can and find difficult doing. Working in a very busy high school can be very demanding but trying not to get too anxious or take on too much . I've started at a excercise class too as i feel this helps with balance and co-ordination. So, i'm still hoping that one day I will be back to normal but for now I do as much as I can.Thank you for asking.