Posted , 3 users are following.
I have had multiple blood work ups, full panels. My ANA range is 160 and but the doctors will not diagnosis me with Lupus or anything close. I've been rushed to the emergency room 3 times for inflammatory issues with my eye. The eye doctors consistently tell me it's an autoimmune issue but the doctors disagree. I keep a low grade fever and feel like I have the flu constantly. I have complained of fibromyalgia like symptoms but they tell me that is unexplained and can't really be tested, I live with chronic symptoms no one seems to be able to explain and they tell me my results are all normal. I've had Thyroid test after test to tell me they are all normal. Yet, I'm on medication for Seizures and they ask me if my blood pressure has always been low. That doesn't make sense. I took a look at my blood work results, it showed Speckled. I didn't know what that meant until I looked up it this last time my eye went out on me. Turns out it is a possible indicator of SLE Systemic Lupus Erythematosus which is harder to detect. Why didn't my doctors mention this to me. Why are they not talking to me about this or discussing the possibilities of this being an issue? I really don't understand. I have been searching and still searching for a doctor to just listen to me and help me with these issues. My constant fatigue, I'm always cold, my hair loss (I had to shave my hair bald because it fell out in so many patches), my face is so scared, I thought is was just bad acne, my digestive issues, I keep my nails short because they crack and break, the list goes on. I truly thought is was a Thyroid issue but after all the test I gave up on that. I really gave up on it being Lupus until my eye started feeling like it had rocks in it again. Finally for the 4th time I saw an eye doctor and he said the same thing the other 3 did, it's an autoimmune disease. You should see your doctor. Why does my eye doctor think it is autoimmune but my medical doctors don't. No one will help me because my results are normal but they really aren't. What is going on? What am I missing?
0 likes, 7 replies