Womens group?
Posted , 9 users are following.
I wanted to join the women's group for lichen s. Not sure I am in it or not but hope so.
All I read on it say I should have white patches and itch - neither of which is happening but I do feel burning and soreness. A coloscopy is planned in July so maybe that will diagnose what it is more accurately. Or does it sometimes occur without actual itching?
0 likes, 18 replies
justine89448 sarah11452
Posted
cherylr sarah11452
Posted
sarah11452 cherylr
Posted
lynne1945 sarah11452
Posted
you are definitely in a group that will help you with your questions. LS is not strictly a women's disease, men also get it. There are men here at times but mainly women using this group.
Maybe best not to diagnose yourself, Sarah. Wait until you get results back and / or see a specialist dermatologist who will recognise what it is
(usually by sight.) Do you have vaginal symptoms as colposcopy is used to see inside.
I have symptoms like you but I have eroding Lichen Planus of vulval area. No itching, no white plaques. But some people with LS also don't have itching. Sometimes it takes a while to get a proper diagnosis. Keep pushing. You have to be proactive with this condition, nobody who doesn't have it can imagine for a moment how it can effect your whole life.
good luck. Sorry you have to be here.
sarah11452
Posted
I didn't know that using a steroid cream will mean the LS will not show up on the biopsy - my dr has told me to use it in the meantime between now and the biopsy in July.
After the consultant examining me I was in great pain the following day - he only felt around, didn't do much really! The burning sensation was all over the outside and up towards where the clit is too. Very worrying for me. The pain is all outside, none inside but then I am not having sex so who knows.
justine89448 sarah11452
Posted
barbara49618 sarah11452
Posted
sarah11452 justine89448
Posted
sarah11452 barbara49618
Posted
sarah11452
Posted
justine89448 sarah11452
Posted
lauren33630 sarah11452
Posted
If this tiny patch of skin hadnt coloured after so long I would still be going crazy and thinknig I had recurring thrush/herpes. My main issues were with skin breaking - as you said like little paper cuts... but i wasnt vigorously wiping or having sex to cause them. And a change of texture in my skin... like rough saw patches, usually in the same places.
ChrissyC sarah11452
Posted
When I had my biopsy taken from my labia minora a few years ago now the appointment was at the colposcopy clinic. It confused the heck out of me when the appointment arrived. So maybe that is the same for your July appointment.
I have also heard the same information around steroid use negating biopsy results so DO sort that out rather than go through that for nothing.
Good luck! x
sarah11452 ChrissyC
Posted
ChrissyC sarah11452
Posted